I am an eternal optimist, but I like to think, as a good persuasive argument paying recognition to an antithesis confirms even more the intended point, my optimistic philosophy is likewise strengthened when I give room for what can sometimes be a disheartening reality. I try to balance my self-reflection somewhere between laziness and annoying hyperstimulation, so I hope this comes out as I intend...somewhere in the comfortable waters of "I'm treading, I'm figuring this out, I'm doing what works for me."
I see the good and talk about the good and my outlook fits me like a well-tailored suit, allowing me to use my strengths and yet paving the way for growth from the not-so-pretty times. Likewise, I know and love and respect others with different philosophies and have had discerning moments of clarity from their sometimes more dismal perspectives. Because sometimes life is hard and reality does suck and ignoring that fact does not give room for the progress and production that can come from those moments.
While progress comes most naturally for me from expressing gratitude and painting strokes of vibrant color where I can, when more painful moments come--and they do--I want to pay appropriate attention to what they can teach me. Sometimes when anxiety or discomfort or that throat-constricting sadness arrives, I want to heave it along like a hot potato that doesn't belong amongst the yellows and ceruleans I aim to create. But gray has a beauty all in its own. Gray is purposeful too, and while I may instinctively attempt to quickly fold it and stash it away, I am learning to first run my hands along its threads and find the beauty in cold and calm as well as warm and spirited.

With that unnecessarily long disclaimer, I think it is only fair I pull out the gray I folded up earlier this week and let it have its moment too.
My dad tried to keep it from me, but he finally felt he needed to share a rough week he had at work last week. He spent every day visiting a 50-year-old woman who had come to the hospital from a group home, and her health slowly deteriorated until she died on Friday. She was alone and incoherent. She had Down syndrome. My dad said he spent an inordinate amount of time with her. She became a favorite and he spent many hours sitting with her, talking with her, even though she did not understand. He gave her a stuffed animal. But still, she was only 50. Alone, unresponsive, and she did not make it.
And here's the deal. Life expectancy still scares the hell out of me. I know things have changed and individuals with Down syndrome are living much longer now. I am hopeful, and today is really all that matters--and today is good--but somewhere there is a part of us that hopes every day that, no matter what, our kids will outlive us. It's a parent's greatest unwritten plea. And knowing that I have scientific data that increases the likelihood that I will hold her hand before she holds mine made me really, really sad this past weekend.

I held the hot potato, I felt the burns, I cried and used it to fuel me. I am at peace now and am grateful for our very beautiful right now. I will not dwell on tomorrow, for it is unknown and filled with voids. Today is quite the contrary. Today is good. And I write not for sympathy or to ignite a discussion of optimism vs. pessimism but simply to slap a valid antithesis among "enjoying the small things." It makes the small things even better.

Which is why I'm completely geeked about my spontaneous decision to redo my bathroom this weekend on a very tight budget. The challenge thrills me. And while I actually considered painting the walls a languid gray--because gray is good too--I have settled for a vibrant, crazy aubergine. To thine own self be true.
Life is sometimes hard. Reality sometimes sucks. But most of the time? Most of the time, it's amazing.
Like these wicked cute reversible bibs? Brooklyn Bib Shop is giving away a quilted bib/burp cloth set to a random commenter on today's post. But wait...
With the yin and yang of discomfort and joy, I want to know more. While I've made peace with my gray this week and am finding joy in a can of Inkberry #73RB, tell me briefly...what's your "gray" this week, be it large or small...and what little happy is bringing you color?
Wednesday, November 3, 2010
Grays and Colors
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«Oldest ‹Older 1001 – 1046 of 1046my "gray" this week has been my little girl being ill and my own sleep deprivation. i have found some happiness and color in my baby boy learning new things, being surrounded by fall and wearing sweaters. i regularly get teary when reading your posts {love your writing} your girls are adorable.
I love your blog! I just wanted you to know that my aunt has very severe down syndrome and she is nearly fifty living in a group home with a job and she is doing very well. My grandparents were told that she would not live to see adulthood, but she is still doing well.
My gray this week was my son being in the hospital for an abscess in his neck near his skull and carotid artery. They thought he would have to have surgery, but they didn't want to have to do it with its location.
My color has been the prayers and support from family, friends, and church. The prayers worked and he responded well to the antibiotics and is home now.
My gray ~ I'm a high school special education teacher...and a student who I thought was making progress had a bad week.
My pink ~ Sitting there tonight and having my 4 year old come over, put her head on my shoulder, and tell me she missed me today!! and my one year old (can't believe I'm calling him a one year old! wanted me and yelled "MMMMMMOOOOOOOOMMMMMMMMMMM"!!! Best thing in life are truly your children!
Every mother shares the fear that we just may outlive our children - you are not alone.
My gray would probably have to be the anxiety surrounding a big family change, but my color is the mischievious smile of my 20 month old - like always. This week I am quite amused by the random new words she's spitting out - like "garlic". Life is good.
First, a disclaimer - I know a pet doesn't compare to a child. I know. I have both. But, I know people who, after losing a pet, say they'll never have one again because, well, if you're lucky, you've got 'em for a decade, which means you'll, in all likelihood, suffer loss. This, to me, is tragic. Why live life alone, yearning for the companionship of an animal, because you're scared you'll be sad one day. Just keep adding up that joy, and, although the sadness may come, the joy will be there to protect you from it. Thanks for sharing the gray.
My gray is is just feeling like a mom on the brink...because this was one of those weeks when you feel like no matter how awesomely, superhero-ish you are, you can't do it all. And sometimes, well that's just hard to deal with.
My color...tonight it is the smell of the quilt at my parents house because even though I now have a home of my own, that smell is still home to me.
Gray ... legal battle that seems like it'll never end, even though no one can afford it and the stress it causes me affects my children.
Color ... my kids, they crack me up, constantly. :)
Life is precious no matter what.
At my gym, the dad take her daughter for walking. (who has DS) beautiful girl)
Today at Costco.. I see babies in cart. I saw one beautiful boy probably your girl's age too. who has DS too.
They will always be the special to us too! No matter what.
hugs!
My gray is being a working Mom spending precious time away from my 2 babies.
My color comes in the quality time we spend together at night. Like tonight when they were piling up on me and their giggles went on forever. I cherish every single second that I get to be with them.
My "gray" this week was some really ignorant woman I work with, who really got under my skin. A person whom I've only known for about two months and who let me really be pissed off, when I most definitely didn't need to be. But...my "color" was most definitely coming home every night to a wonderful man who celebrated his birthday last night. And our pup who truly melts my heart as soon as I walk through the door.
Thank you Kelle...for this!!!
Grey
-My husband is at VGH. He just had his stem cell transplant for his returning Leukemia. Although his mom is staying close to him (the hospital is almost 2 hours away), I might not get to visit him with the boys this week because I may be getting a cold. I'm bummed that I cannot hug him this week and kiss him.
Colour
-Well, of course, reading your blog.
-My two little boys and my husband who are a daily reminder of why you need to make each day special.
-Pillows. I've been sewing pillows and pillow covers for my bedroom and living room this week. It's been keeping my mind happy.
My grey right now is crappy infertility. It plain ol' sucks. Especially with every sister-in-law pregnant and on our girls night everyone was giddy over their little ones. But I have to keep my chin up.
And this post made me realize that a goal of mine is to have a stack of homemade colorful quilts next to our couch for family snuggles and movie nights. When we do have children roaming our halls and rooms we will have quilts galore for winter warmth. Better get started now!
My 18 month old son has Ds. He is a JOY and is loved unconditionally.
My gray: finding out babies with Ds in many countries are abandoned, neglected and left alone to languish in orphanages
My color: Reece's Rainbow! A Christian ministry striving to find families for these children before they perish in the orphanages.
It's reecesrainbow.org in case you want to see this incredible organization. We are adopting two baby boys with Ds through them. Feel free to follow along on our journey to rescue these two beautiful boys if you get a chance.
the-scenic-route-momto6kids.blogspot.com
LOVE your blog, Kelle!
After reading hundreds of the comments here, my Gray amounts to nothing so I won't even bore you with it. My Colour is that we celebrated our White Labs 8th birthday yesterday...The vet told us 18 months ago that she had lung cancer - she is showing no signs of distress. That alone makes me want to dance. I look forward to spending the weekend with my family and friends. My Mom always told us that....No matter what life throws at us, we have to think positive and remember that someone out there has it far worse. I am happy today.
My grey (yep, that's Canadian for "gray") is the anxiousness of waiting for hubby to arrive home in 5 days from a 10-week course on the other side of the country (we're a military family). I can't wait to be together as a family again, but reintegration (as the Army calls it) always comes with difficulties and tension. So I don't look forward to those moments, especially with my pregnancy hormones getting in the way. :oS I'm praying for self-control and kindness.
My "colour" is anticipating watching him with our 14-month-old daughter, and learning all the new things SHE has learned since he's been away: walking (!), new words, how to pet the dog without smacking her in the face, brushing her teeth, and all the little quirks a kid that age has. Watching them together is life's truest joy for me, because they are SO alike.
Thank you for being so honest here, Kelle. I hope it's therapeutic for you, and that, as time goes on, you can look back on your entries and see not only how you've grown, but how you've been loved and cared for in life.
My gray is a very troubled adopted daughter and fears for my disabled son's future: wanting him to lead a rich life.
My colour is seeing our ability to adapt and change and grow and stretch as people, in ways we didn't believe possible. My colour is the kindness I see people extend around us, when they know we're struggling. My colour is my kids and family and thoughts of my Dad, who died a year ago, every time I see something wondrous in nature. He approached life with a sense of wonder and gratitude, and whenever I see beauty I feel that it is him sending me a reminder. My colour is walking by the lake and feeling the sun on my skin and taking photos of the water rippling over the rocks.
My colour is knowing that people like your father exist, people who know that we are all connected in our humanity and who reach out to grace and bless others and walk beside them in their journey, no matter how challenging.
Thanks Kelle.
Kelle I've missed your blog. My bits of gray have kept me from getting online lately. I needed this entry. Thank you. My gray is that on Sunday I turned 30 and having Type 1 diabetes, as much as I don't let that disease stop me from doing a single stinkin thing, I've been wondering if I have more days behind me than in front of me. I was freaked about my birthday....and instead of celebrating it with my husband and family, I cried through it...my husband was sick and had been in the ER the previous day, a baby cousin was in the PICU on a donor list, and I felt such gloom as I kicked off my 30's. That was the gray. But the color was so much better...the baby got her new organ on the 1st try (!!), my husband felt good enough to start the new job we'd been praying about for 18 months, and I'm going to kick butt in my 30's. And get this, my mom has the same type of diabetes that I have. Her parents were told she wouldn't live to see her own grandchildren...well, last weekend when my husband was sick, guess whose house they got to spend that time at? Yep, my mom's. :o) I just needed some color right now...thanks for the what you wrote! ~Amy~
I have lived with this fear everyday of my life, for the last 13 years.
Goosebumps! A moving post! I cried reading it! I feel your dad did the right thing by telling you about her, you needed to know. Thank you so much for sharing this beautiful story. I know in my heart that my J and your Nella will always have someone that will love and protect them.
I'm an eternal optimistic too and consciously choose to focus on the good. I'm also a lover of reality and truth. I know life can be interesting and challenging. And, whenever I have to, I visit the dark places, go deep, take as long as I need to figure things out and move forward.
I have learned to be with my pain...to listen to it...to make friends with it...pain can be a great companion...a wise messenger...a reminder...to be and to stay humble...the greatest gift pain has given me is the ability to sit with other people's pain...to emotionally put myself in their place...connecting with their pain...when I feel their pain as my own...I realize that their pain...it is no longer their pain...it is our pain...one pain...by touching our pains...we help each other...and healing happens...we no longer feel so alone...we understand that we are all traveling on our own soul's journeys together...
We are resilient. Our experiences make us stronger. We are capable of handling anything that comes our way. We honor the life we are given by loving and enjoying it, being grateful for our blessings and doing our best one day at a time. When we have faith that everything happens as it meant to be, that It will all work out for our best, and trust with all our being that our tomorrow will be taken care of, it is easier to keep going. All is well.
Rik, you are an amazing man, love your beautiful soul. Your kindness made a difference in the last days of that woman's life. She was seen and loved. You held her in a sacred space. And, because of you, now many people know that she existed, that she was here.
Sending you lots of love~
“When two people relate to each other authentically and humanly, God is the electricity that surges between them.” ~Martin Buber
Gray seems to be the overwhelming color of my world lately.
My husband is out of work
I can't have a child without IVF
We don't have the money for IVF or adoption
I'm really too old for IVF anyway
My grandparents memorial was today..
My husband has medical issues...the list goes on.
My colors: I have friends IRL and via the internet...and blogs like this..to remind me to look for the colors. They are out there.
My grey is that my docs told me that "The length of my Bucket-List will not be long". That I need to "enjoy the Holidays". That I am Terminal.
My color? PINK! The PINK cowboy boots that I WILL get before I leave this earth! The PINK cowboy boots that I will wear as I dance into Heaven!
This is one of the most beautiful blog posts I have read . . . maybe ever. This is such a struggle for me right now. When I began my blog a little over a year ago, it was to try to build a discipline in focusing on the "colors", to use your concept. Then the gray seemed to wash all over my life, almost every inch of it, and I struggle with how to keep a blog that is predominately gray something readable, enjoyable, valuable. I mean, people will say they want you to be "real" on your blog, but I'm not sure they really do. And, frankly, I don't really want to write all this stuff right now . . . and yet, nothing else seems important these days.
I have no choice, right now, but to acknowledge the gray, work on folding it with care, giving it all the time it needs, and look forward to the colors again.
Wandering around pretty-blogland, it feels mighty lonely sometimes when you are in gray. I thank you for this gentle nod to the gray in your life . . .
Not sure you will read this but...
Just wanted you to know that some people are working their a**es off to make some of that 'grey' a few shades lighter. I am a trustee for the DSRF UK and we relentlessly bug the top scientists to do research for DS.
Love your pics- thanks!
Liz Elliott
Chair DSRF UK
http://www.dsrf-uk.org/
and more importantly, David's sister.
My sun: Playing softball with my son, dog, and my love this morning. I jumped off the swing and had a blast...
My gray: The incredible temper tantrum when we left.....
But all is fine now. And In the scheme of things, all is still well.
My greys today were pretty minimal: three loads of laundry not yet folded, Halloween decorations not yet put away, a package of stewing beef that the cat got to, a party tent outside that collapsed under the weight of snow and a scratch in my favourite Christmas cd. My colours: the two little teeth sprouting from the gummy smile of my 6-month-old and the tiny, fuzzy hairs sprouting on the head of my almost-finished-chemo 3-year-old! Love you, girls. Always will, even on the greyest of days.
My gray this week has been wanting to try for and have a second child so bad that my heart hurts. Feeling so sad that it's not possible right now for reasons I cannot help. Wondering and worrying if my daughter and her future sibling will be so far apart in years they can't have the kind of close friendship relationship I so want for them (she's already 2.5 years old and we are talking years before a sibling might be possible).
My color is that I am SO blessed to have my daughter. And that physically the possibility of a second child is so possible for us, we just need the rest of our world to line up first.
My gray is realizing my children's grandparents (my in-laws) are as distant both physically and emotionally as humanly possible. The color came this weekend when I finally let the anger it brings go. I made the weekend all about the littles and am enjoying every moment of it;a night of pottery painting, attending a junior high musical, snuggling under the blankets having a movie night and reading heaps and heaps of books together. And to think we still have Sunday....
Thanks for giving me an outlet to share. As these thoughts are usually bottled up inside with no where to breathe as my blog is often stalked by the laws.
Hi Kelle - Beautiful post...once again! :)
My gray these days is the fact that my husband has now been out of work for nearly 17 months. Also, my 2 year old may have CP, we have to wait 4 weeks to meet with the doctor to talk about the results of the MRI.
My color comes in every day I walk in the door after work and my two boys greet me at the door so excited to see me. Nothing feels better than that!!
You get a huge part of your beautiful soul, your outlook on life, and your never-ending inspiration from your daddy. I can see that in your photos and your posts, and this post is my "case in point." I am so glad to hear the he took a little extra time and gave some extra TLC to this beautiful stranger.
My gray this week....the unknowing of the company I work for being taken over by new (and unknown) ownership on Monday. I am scared I may lose my job, or scared I may keep my job and have complete new management, structure, etc.
But that is a pretty light gray in my life. I have had my share of medical history - myself, my husband, and my daughter who was born with a cleft lip.
My motto..."another bump in the road of life..." because what other choice do we have???
I hope your "gray" has turned into something bright & fun...a sunshiny yellow, a brilliant red, a deep green. You are a beautiful mama, with two beautiful girls, and I know in my heart that Nella...no matter what age....will NEVER be alone. XOXO to your beautiful blogging mama.
It's such a strange thing to feel like I know you so well just from reading you...but I love it and am so thankful. It's one of my "yellows" of my day - so thank you!!
My gray- holding down my sweet baby boy (now 2) for his annual blood draw to check the lovely things that Ds bring...celiac, thyroid and other fun things.
My color- same boy didn't even flinch for the annual shots.
I am a proud Mom of Superboy!
My gray is that my husband is gone again for training (Army), he left this morning and I'm missing him terribly.
My color- I do this all the time and I love the sense of empowerment I get out of it, plus my babies are amazing and we have big plans to go back to the States (stationed in Germany) for Christmas this year!!! So much color!
My grey is that my Grandfather died this week.
My colour is knowing that he had 88 years and had children, grandchildren and great grandchildren that loved him dearly.
I'm so late reading blog posts this week. You posted this on the day that my "grey" really began to sink in. On Sunday night I picked a fight with someone I love, said horrible things, and may have pushed him away for good. Wednesday was the last time we communicated. I apologized and he replied he doesn't know what to say to me anymore; I haven't heard anything since. It may be childish and small compared to some of the bigger hurts in the world, but it feels like my chest is being crushed. Knowing that someone I care for so much is thinking badly of me, that we may never speak again, that he may never accept my apology.
The color, for the moment, is reading blogs like yours, putting it all in perspective. So many of us are hurting but there is something lovely about this online community of "strangers" who support one another.
Gray...I hear ya. You spoke it beautifully.
Is there any room for one more comment on your amazing post that touched me so deeply?
I am new here, but you had me at the heading.. You have a way with words that penetrate deeply and I felt every word you shared.
I had to swallow hard many times, and let me tell you, that isn't as easy as it sounds whilst fighting through Tonsillitis.. :) But the reality is that I can relate to your worries about the future. My daughter doesn't have Downs Syndrome, but she suffers chronic asthma. An invisible and dangerous illness that strikes hard and fast with no forewarning.
It's tough to let go and just 'trust' but like you I stash my imaginary luggage full of worries, panic attacks, angst and general random concerns. Then I carry it to the shed and leave it there..
Your children are beautiful and I am so happy I discovered your blog. Perhaps my voice will be lost in the abundance of comments you receive. But read just this one and feel the loving support from one mother to another. All the way from Sydney to where you are.
Hang on in there and good luck with the bathroom! :)
x Charlotta
Your Dad's experience would/should turn every world grey for at least a moment. My heart wants to say her life should have been a celebration even at the moment of her death... but where were her family and friends? That leads me to my grey...
which, like yours, is not knowing, with a shade of despair, what the future looks like for my 5-year-old twin boys with Down syndrome. And not knowing how greatly I can influence the colors other people paint onto the canvas of their lives.
My colors are these extraordinary souls I've been gifted! And BELIEVING, with all the vibrant hues of hope in my heart, that the future is bright for my 5-year-old twin boys with Down syndrome Because I know with them and for them, I CAN change the world for the better every day with love and advocacy!
My gray is something that lives like a tumor in my heart, silent, but there and I feel it. It makes me sad if/when I let it. It motivates me and gives me color, but it can crush me too.
I dont have a baby with Downs, but I do have a baby, and I have a Teen. And for some reason, at almost 40, I know i'll get old with my teen. But my baby, It kills me to know how many years I'll miss out on assuming he outlives me (pleas god, let my kids outlive me). If I die at 80, he'll be my age. And I'm still so young, just having more babies, getting married, finally finding my passion in life (photography). I dont want to miss a thing... but I will, and it will be a lot. Too much for my comfort. So I just embrase every moment I do get with my kids, thanks to you and your inspiration, I've learned to capture those moments.
Oh, the contest is probably over, but if not, I dont need a bib. Just wanted to share.
Hi Kelle...I just read this story and thought of you...a little color for your Monday afternoon...
http://www.post-gazette.com/pg/10312/1101186-114.stm
I just love this. Love it.
I was a birght shade of EVERYTHING last Saturday (10-30) We got married and it was the best day of my life. Everything went perfect... until we went to go and leave for the honeymoon... That is when the gray got us both. Honeymoon was cancelled due to Hurrican Tomas, the island (St. Lucia) was hit bad. Just when I thought the gray was turing to black... my cousins called and saved the day. A little gift of their beach house for a week in Seaside, FL. Get this- FOR FREE... We left immediatly... and all week in FL was a very very bright rainbow of colours. I know why you are in love with FL... it is beautiful. Plus I love that sometimes you can get your cold weather fix, yet still have your toes in the sand.
Thank you for your beautiful words.
Kelle,
BEAUTIFUL post, and bathroom transformation. I love the coulors you picked! I can't wait to be a great mom like you!
Becky
DE
Kelle -
I have been reading your blog since the birth of Nella. I am a daily reader (or try to be) but I am catching up today after a difficult week away from my "regular" life. My Dad passed away suddenly in an accident last Tuesday. Today I wanted to return to some of my regular daily things and reading your blog was one of those things. I read your beautiful words and in them I find hope. Thank you for sharing your thoughts and fears. I love your positive outlook on life and try to copy it as much as I can. My Dad would have loved your positive outlook - he never had a negative thing to say - he just moved on and made the best of situations. So thank you - for always sharing what is on your mind. Thank you!
Ann
I just had a little boy with DS on June 30th of this year. He is about 4 months old now. I just read this post - I jump on your blog once in a while when time allows. Funny... on my own blog I just wrote about my visit to Flower Factory this week. I quoted below for you to see my thoughts. When I got on here and read your recent post, it was comforting to know that there was another soul thinking a similar thought. Thanks for sharing... "However, the other day I was in the Flower Factory shopping by myself and saw a middle-aged lady pulling a cart and an older lady (60-ish?) pushing it. I'm almost certain the oldest woman had Downs, but I could be wrong. At any rate, it got my mind thinking about the future and the very good possibility that Myles could be in our home for as long as we are here on this earth. That certainly changes the way we think and talk about the 'future' of retirement or having kids out of the house, etc... :) I also got to thinking about how thankful I am that Myles has two big brothers. It brought tears to my eyes to think of them being older and maybe married and possibly having to care for Myles. That 'thought' doesn't really go anywhere beyond just a 'thought'... b/c I have no idea what lies down the road. Just seeing that lady got my mind thinking and it was the first time in a long time that I cried. My heart is getting bigger for all of these boys... and I'm overwhelmed with gratefulness for what the Lord has given us now!!"
My gray is living with the fact that the man I have loved for years will not love me back and will never be mine.
My happy is seeing the smile and innocence in my 3 year-old niece's eyes in the simplest moments.
My gray is that I worry about my health; that I won't be around to watch my daughter grow up.
My color? My color is that she's a miracle girl, as about only 5 other women in the world with my disease have had successful pregnancies and survived. My color is that I have been able to spend 9 incredible months with her.
I said a hearty "AMEN" when you wrote, "It makes the small things even better." So true.
I'm back. oh how i've missed you! So I remember the day I learned the world is not black and white. How bittersweet to live in the grey sometimes... It is good for the soul. And it does make the colours of the rainbow so much brighter.
I know you already know this, but it's natural to feel these things and it's all part of your process. Nellabean is more than just your little bean. God has big plans for this rockstar.
xoxo
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