Friday, January 29, 2010

Nella Cordelia: A Birth Story


Nella Fantasia (translated from Italian)

In my fantasy I see a just world,
Where everyone lives in peace and honesty.
I dream of souls that are always free
Like the clouds that float
Full of humanity in the depths of the soul.

In my fantasy I see a bright world,
Where each night there is less darkness.
I dream of spirits that are always free,
Like the clouds that float.

In my fantasy exists a warm wind,
That blows into the city, like a friend.
I dream of souls that are always free,
Like the clouds that float
Full of humanity in the depths of the soul


Cordelia: Dorothy Cordelia, my dear loving grandma, who taught me more about life than she could have ever known.


This is probably the hardest thing I've ever had to write in my entire life. The hardest and yet the most beautiful. As I even just begin to type here, late, in the dark in my room alone with my girls sleeping next to me, their little faces barely visible from the glow of the the same candles that flickered in a very special room one week ago, my heart starts aching thinking of where I was at exactly this moment last week.

A week. How can it already have been a week? I've thought a million times what I'm going to write here and how I'm going to begin and what order I'll put it in and I think I've been so afraid to come back here...so afraid of not doing justice this very precious night...of leaving something out...of attaching simple words to an event that is so far from simple, it might just not be possible. But I need to get it out. I don't know how it's going to come or if it will make sense, but I'm just going to write. And when I get stuck, I will pick up this tiny blessed life beside me and hold her tight. I will breathe her in and remember...

Oh, here it goes.
The story of our daughter's birth.

This is Nella's Story.

I turned 31 on December 29...exactly a month ago. We went to dinner with friends the evening before and as we left, we saw the new bookstore nearby welcomingly lit up. I had told Brett I didn't need anything this year for my birthday as Christmas had just passed, but at the sight of the bookstore, I remembered a book I had read about from another photographer. As we walked by, I told Brett I changed my mind. I wanted a book, and I wanted it...tonight. So we ventured in, and he played with Lainey downstairs while I wandered up in the self-help section, thumbing through titles until I landed on the only copy of the book...A Million Miles in a Thousand Years by Donald Miller.

Later at home, we put Lainey to bed and I drew a bath and climbed in with my big pregnant belly, my new book and a highlighter. And I read. And read. And read. Underlining, highlighting, starring paragraphs and quotes and words that moved me hard. I warmed the water about a trillion times and pruned my skin to raisins, but I could not stop reading. It turned into a three hour bath followed by another hour or so of reading in my bed. By the end of the book, I was inspired. Inspired to write a new story for our life...inspired to face challenges and leave my comfort zone and go through hard things because that is what turns the screenplays of our lives from boring to Oscar-worthy. And, to be honest, in my mind, our uncomfortable challenge was the changes in our life with Brett's job and having him away from home. Little did I know.

Fast forward.

Last Thursday, Brett & I teased all day that we were so ready for this baby, she had to either come Thursday or Friday. Every time he called me from work, he told me I should be out jogging. I didn't jog, but I did walk like crazy, trailing Lainey through the streets of our neighborhood in a stroller, thinking, "These might be the last moments with my only daughter alone." And Thursday night, the pains started coming...nothing horribly uncomfortable but some significant cramps that were semi-regular and popped up several times through the night. By morning, I had several that were 15-20 minutes apart, and my doctor, convinced I would go fast once I was in full swing, suggested I go to the hospital within a few hours. I remember getting off the phone and it hit me. Today was going to be the day. It was surreal. I texted my friends. Called my family. And began the last steps in the ever long process of saying goodbye to my 'only child.' She wanted her face painted like a kitty and, although I was excited to pack up and head to the hospital, I savored every brush stroke of those last moments with my big girl.

I called my friend, Katie, in Fort Lauderdale. I met Katie the night Lainey was born as she was the delivery nurse...and we have since been forever friends. She promised me she wanted to be present for all my babies' births, so she high-tailed it over I-75 after my call to get there in time.

It was strange. It seemed so real and yet I had dreamed of this moment for so long, it seemed a bit like a dream as well. It all just hit me...we had waited for this. Wanting a second child. Losing a pregnancy. Getting pregnant. The horrible night I thought it was all ending and the trip to the E.R. where we saw that little heartbeat. Waiting and preparing and finally, these last weeks, having everything just...perfect. The birth music ready to go, the blankets I had made packed and ready, the coming home outfit, the big sister crown for Lainey, the nightgown I had bought just for the occasion...what I would wear holding my daughter the first night I rocked her to sleep. Even the favors I hand-designed and tied every ribbon on were lined and stacked in a box, ready to pass out the moment the room flooded with visitors. My heart could hardly hold the excitement, and I will never ever forget what it feels like to long for your baby being handed in your arms the last few days of your pregnancy...it's so real, you can touch it.



We said goodbye to Lainey as we left her with Grandma and headed to the hospital where I was quickly instructed to drop trou and gown up. I slipped the white ruffled skirt and black shirt I wore into a plastic belongings bag. Days later, just the sight of these clothes--the ones I wore during my excitement and happiness...during those last 'happy' moments before my life was changed--would bring pain. I think Heidi finally hid the bag because it made me cry every time.

The early stages of labor were perfectly beautiful. Nothing hurt that bad, I had the anticipation of this eutopian experience ahead of me, Brett was chill, and my girlfriends started trickling in the room. We actually played a game...the "if you could..." cards I had packed in my bag for this very purpose. I had it perfectly planned, and it was going just as I had imagined...but better.

By 2:00, my water had been broken and my contractions were in full force. The room was full of excitement and laughter. I chatted with my girlfriends until a contraction came on where I shifted gears, "ow-ow-ow-ow-ow'd" my way through it (and cursed), and came out of it as fast as I went in, picking up the conversation where we left off. I checked to make sure Brett was okay. Several of my girlfriends were headed out for a birthday party but, with news of my status, they all huddled into the room, dressed to the nines, before their night out to check on me. I liked the commotion...I loved the anticipation. I loved the feeling of people waiting anxiously for our baby. It felt special. ...and we were so ready.



Two hours went by and I was off the wall in pain, begging for anesthesia to get in with an epidural. They were tied up, and so I cursed them too. Little did I know, I was a 9. This is where things begin to get hazy. It all just happened so fast. I remember anesthesia walking in to give me an epidural, Brett getting uneasy, girlfriends talking me through it, my pediatrician stopping in to say 'hi' during her rounds, and my obstetrician walking in and gowning up. This was it. With Lainey, it took forever and here I was, just hours after walking in this place, and they were going to tell me to push. They were going to tell me 'just one more' and then suddenly my life was going to change.

I couldn't grasp it even then. It was all just happening so fast and I wanted to savor it. I looked around the room and tried to take it in...the candles, the music, the lavender oil I brought that wafted through the room and calmed the tension. And then I remember just speaking to myself. You are about to meet your daughter. You are about to be changed for good.

At this moment, I heard the sounds of our birth song begin to fill the room...When You Love Someone.

And I began to cry.

My husband, my friends, my dad, my nurses...all of them smiling...cameras flashing...

One more push.

Oh, this is so hard...

I pushed. I pushed and watched as the tiniest little body came out of me, arms flailing, lungs wailing...and then, they put her in my arms.

...and I knew.



I knew the minute I saw her that she had Down Syndrome and nobody else did. I held her and cried. Cried and panned the room to meet eyes with anyone that would tell me she didn't have it. I held her and looked at her like she wasn't my baby and tried to take it in. And all I can remember of these moments is her face. I will never forget my daughter in my arms, opening her eyes over and over...she locked eyes with mine and stared...bore holes into my soul.

Love me. Love me. I'm not what you expected, but oh, please love me.



That was the most defining moment of my life. That was the beginning of my story.

I don't remember a lot here. My friends have filled me in, but I feel like I was in a black hole. I know I held her. I know I kissed her. I know I begged every power in the world that this wasn't happening...that she was normal, but I knew in my soul exactly what this was.

She was scooped off my chest and taken to the warming bed where nurses nervously smiled as they checked her over. I wanted someone to tell me what was going on...I kept asking if she was okay, and they told me she was fine. She was crying and pink and just perfectly healthy. I wanted to say the words, but couldn't. So, I asked why her nose was smooshed...why she looked funny. And because she came out posterior and so quickly, many people in the room honestly thought she'd look a little different in an hour or so. But I knew. I cried and cried while everyone smiled and took pictures of her, like nothing was wrong. I kept crying and asking, "Is there something you aren't telling me?" ...and they just kept smiling.





At this point, I have believed until recently that the pediatrician came in right away and told me the news. But because I was so confused and emotional and haven't slept much in a week, I am told it wasn't right away. The nurses apparently called my pediatrician in for 'D.S. suspicions.' And during this hour, I was handed back my daughter as if everything was okay.

When I think about this time later, I have cried and cried wondering what I did. Did she feel love? Did I kiss her? Did I hold her and tell her 'happy birthday' and smother her with happy tears? My friends in the room smile when I ask this and promise me I did. They said I couldn't stop kissing her. And while I held her, the room went on. Someone popped champagne and poured glasses and a toast was raised..."To Nella!" while I sat, confused, trying to take it in.

...and I am so very blessed my beautiful photographer friends, Laura and Heidi, were there to capture every single moment. They never stopped shooting...there are over 2000 images from the delivery and they have helped me relive the beauty. This photo is so beautiful to me...because it speaks with emotion. This is how I felt while everyone carried on for me.



I remember feeling....nothing. As if I literally left my body for a bit.

But they said I kissed her. They said I loved her. They said I was a mama.







I remember my pediatrician suddenly walking in and my heart sank a bit...I knew. "Why is she here?" I asked. And they told me she was just checking the baby out. Which she did. And then the room grew quiet and everyone was asked to leave. I started shaking. I knew it was coming. The tears. The twisting in my stomach that they were about to rock my world.

Brett stood behind me, stroking my hair and my nurse friends, Dot and Katie, stayed on either side of the bed. And it happened.

My pediatrician snuggled Nella up in a blanket and handed her to me...and she knelt down next to my bed so that she could look up at me...not down. She smiled so warmly and held my hand so tight. And she never took her eyes off mine. We had been through a lot together with Lainey's jaundice and I have spent many tearful conversations with her over the course of these two and a half years. She is an amazing pediatrician. But at this moment, she became more than that. She was our friend as she beautifully shared the news.

I need to tell you something.

...and I cried hard... "I know what you're going to say."

She smiled again and squeezed my hand a little tighter.

The first thing I'm going to tell you is that your daughter is beautiful and perfect.

...and I cried harder.

...but there are some features that lead me to believe she may have Down Syndrome.

Finally, someone said it.

I felt hot tears stream down and fall on my baby's face. My beautiful, perfect daughter. I was scared to look up at Brett, so I didn't. I just kissed her.

And then, Dr. Foley added...

...but, Kelle....she is beautiful. and perfect.



I asked for my dad to be let back in the room. And when he walked in, I cried again. They think she has Down Syndrome.

And he smiled as his eyes welled up with tears and he said, "That's okay. We love her." He scooped her up and I asked him to say a prayer. And there, in the delivery room where moments earlier she entered the world, we huddled around my bed...Brett still stroking my hair, Katie crying on one side, Dot on the other and Dr. Foley kneeled down beside my bed. He prayed and thanked God for giving us Nella and thanked him for the wonderful things he had planned for us. For our family. For Nella. Amen.

Dr. Foley hugged me and told me she got to hold her for her examination, but now she wanted to hold her just for some snuggles. And she did. I will always remember her compassion and know there is no one else that could do a better job sharing this challenging journey with us.

Katie asked if I wanted to nurse Nella, and I did. Another dreamy moment I had always anticipated and yet it felt so different this time. But I remember her latching right on and sucking away with no hesitation and looking at her, completely accepting me as her mama and snuggling in to the only one she's ever known and I felt so completley guilty that I didn't feel the same. I felt love, yes. I just kept envisioning this other baby...the one that I felt died the moment I realized it wasn't what I expected. But the nursing...oh, the nursing...how incredibly bonding it's been. The single most beautiful link I've had to falling in love with this blessed angel. And, look...I smiled. I don't remember smiling, but...I smiled.



The hallway was still filled with everyone who was waiting...and there are stories from our other wonderful friends and family of what happened behind those walls while they waited. All I know is that there was more love in that birthing center than the place could hold. As anxious eyes re-entered the room, I held my baby and told them all, crying, what we had been told. I knew there was a stream of friends ready to come and celebrate and I wanted them all to be told before they came in. I couldn't emotionally handle telling anyone and yet, strangely, I wanted people to know as soon as possible because I knew I needed the troops...I was falling, sliding, tunneling into a black hole and I needed as much love as possible to keep me up.

I just remember happiness. From everyone. All of the blessed souls in that room celebrated as if there was nothing but joy. Everyone knew...and there were a few puffy eyes, but mostly, it was pure happiness. More friends trickled in. More smiles. More toasts. And hugs with no words...hugs like I've never felt. Ones that spoke volumes...arms pulled tightly around my neck, lips pressed against my forehead and bodies that shook with sobs...sobs that told me they felt it too...they felt my pain and they wanted to take it away.





And Brett...well, he never left our girl's side. He was quiet through this all, and I'm not sure I'll ever know what he felt, but I know the daddy of our babies, and I know he knows nothing but to love them with all his heart. And he did from the very start.



As soon as the epidural wore off, I wanted my own nightgown. They were going to take me to our new room upstairs, and I was ready for a new start. Everyone carried our stuff up and waited for us. And then...the moment I always talk about...the moment they put you in that wheelchair and place the baby in your arms...and stroll you through the hallways to your room while onlookers smile and wish they were you. It's so strange, but I barely remember it.

I remember arriving to our room and being told Lainey was on her way. And I cried new tears...I hadn't even thought about how this would impact Lainey...what she would think...how her life would be different...how every beautiful vision I had of two sisters growing up together, grown-up phone calls, advice-giving, cooking together, shopping...everything would be different. Numbness started leaving my heart and sheer pain started settling in.

Don't cry. Don't cry. Don't cry when Lainey gets here.

...and then I'll never forget her face...her cute outfit someone put her in...her eyes when she walked into that room, and the way she tried to hide her excitement with her shy smile.

I will never forget the day my girl became a big sister.

I will never forget the moment her little sister was placed in her arms. I watched in agony...in tears...in admiration as my little girl taught me how to love. She showed me what unconditional love looks like...what the absence of stereotypes feels like...she was...

...proud.

...and that was one of the most beautiful moments of my life. I needed that.

As darkness set in that night and people started trickling out, I felt paranoid. So completely afraid because I knew with darkness...with the absence of everyone celebrating...the grief would come. I could feel it coming...and it hurt so, so, so very bad.

I wanted Lainey to go home with Brett. My heart was in a million pieces and wanted to be with her, and if I couldn't, I wanted him there. And so he left...with the little girl that completed my world, and I was left in the hospital with my two amazing, wonderful friends who will never ever know how special they are because of what they did for me that night. And they heard and saw things no one else will ever know, but I could have never made it through the night without them.

I think I cried for seven hours straight. It was gut-wrenching pain. I held Nella and I kissed her but I literally writhed in emotional pain on that bed in the dark with our candles and my friends by my side until the sun came up. I remember trying to sleep and then feeling it come on again...and I'd start shaking, and they'd both jump up and hug me from either side, Nella smooshed between the four of us. I begged for morning, even once mistaking a street light for sunlight and turning on the lights only to find it was 3 a.m. and I still had to make it through the night.

I can't explain that evening. And I suppose it's horrible to say you spent the first night your daughter was born in that state of agony, but I know it was necessary for me to move on to where I am today. And, knowing where I am today and how much I love this soul, how much I know she was meant for me and I am meant for her, knowing the crazy way our souls have intertwined and grown into each other, I can say all this now. It's hard, but it's real, and we all have feelings. We live them, we breathe them, we go through them and soon they dissolve into new feelings. So, here I go.

I cried out that I wanted to leave her and run away. I wanted to take Lainey and my perfect world and this perfect love I had built with my two-year old and our cupcake-baking days and our art projects and our beautiful bond and I wanted to run like hell. I wanted to be pregnant again. I wanted to be pregnant so bad. I wanted it to be the morning she was born again...when I was happy and excited and when I wore the white ruffled skirt and black shirt and put it in the belongings bag knowing joy was to come. I wanted to go back. I wanted to go back. I wanted to go back.

I moaned in pain and through it all, this little breath of heaven needed me. I cried while I nursed her. I cried while I held her. I cried while I pulled my nightgown off just so I could lie her body on my naked skin and pray that I felt a bond. I literally writhed in emotional pain for hours. And Heidi and Katie saw parts of me no one else have seen. My eyes were so swollen, Heidi said I looked like Rocky...like someone beat the hell out of my face and then cut little slits for eyes. It was that bad.

...and then morning came. ...and with it, hope.

There is so much more I could write...and I will...in chapters of our book.

My sister arrived the next day and revolutionized the place with her "I Have a Dream" speech. She told me I swallowed the blue pill. She told me I could never go back. But that I held a key to a door that no one else does. And, with tears in her eyes, she excitedly and passionately told me how lucky I was. She told me that I was chosen and that it is the most special thing in the world. She told me it was going to be just fine.

And she was so right.

The day after Nella was born, I fell in love hard. I knew she was mine. I knew we were destined to be together. I knew she was the baby all along that grew in my beautiful round tummy...the one I thought I almost lost...the one that I proudly rubbed when people told me how beautiful that belly was. It was. It was Nella all along.

A huge turning point for me was when my sister published my blog entry and an outpouring of love turned on. I had no idea. None. I had no idea you all were out there. And the words you all said...I believed them. And maybe I believed them all along, but to hear them when I needed them...you all empowered me. And my friends and family...oh, they'll never ever know how special they are to me. I've never felt so loved. You all truly gave me your hearts to borrow while mine was breaking. And you loved my baby. You loved her so good. You're not her mama and yet you washed her with tears when you held her. You kissed her. When she cried in the middle of the night and I needed some blessed sleep, you rigged up the jaundice lights against the nurse's orders, put your sunglasses on and took turns sleeping in a chair just to hold her.

You promised to be there on this journey and that alone means more than we can ever tell you. To be loved...is the greatest feeling one can ever feel.

Over the course of the next several days, things just became beautiful. I cried, yes...but they soon turned to tears of joy. I felt lucky. I felt happy. And I felt that I didn't want to run away with Lainey anymore...and if I did, I was taking my bunny with me.

When Lainey was in the hospital with jaundice, I remember hugging Brett and crying. I told him if God would make her better, I'd do anything. I'd live in a box, I'd sell everything we had, I'd be happy with nothing...just make her better. When she did get better, that feeling of raw gratitude was real, but it wasn't long before real life set in and I was complaning once again about the dirty grout in our cheap tile and how much I wanted wood floors.

I've often thought about how quickly that feeling left because we have a perfect, healthy little girl running around that erases all the painful memories of when we thought something might be seriously wrong.

I felt that feeling again last week. And as the pain has slowly disipated, I've realized...I will always be reminded. My Nella, my special little bunny, my beautiful perfect yet unique girl will be my constant reminder in life. That it's not about wood floors. No, life is about love and truly experiencing the beauty we are meant to know.

And so, we came home...happy. In fact, walking out of the hospital with our new baby girl and our proud new big girl, all crowned up, gripping the handle of the carseat with Daddy...it was just how I had imagined it.

Life moves on. And there have been lots of tears since. There will be. But, there is us. Our Family. We will embrace this beauty and make something of it. We will hold our precious gift and know that we are lucky. I feel lucky. I feel privileged. I feel there is a story so beautiful in store...and we get to live it. Wow.

The story has begun...

Page by Page...

(First "Well Baby" Visit...Dr. Foley, we love you.)

I cannot begin to tell you how much I love her. I wouldn't trade her for the world, and y'all can have that heart you let me borrow back. My broken heart has been healed...and if you held her, you'd know what I mean.

photographed by my dear friend, heidi

My Girls. I am complete.

There's been so much wonder I've wanted to share...but I knew I had to tell her story first. More to come...we've been taking lots of pictures and loving the beauty of life...and the funny...and the hectic...it's been crazy.

...but beautiful.

I did it. I told our bunny's story.

3,826 comments:

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milliganga said...

oh my as I read this blog that was sent to me by a friend I cried tears of joy. This is one of he best reads I have read in awhile. I have to say you are so blessed! Your baby is so beautiful! God has chosen you to be that little girl's mother for a reason and may he be by you and guide you while doing so. He will bless you beyond measures untold, for she is a child of God and perfect in every way. Hugs to you and your family and congrats on the new baby.

themilligans said...

oh my as I read this blog that was sent to me by a friend I cried tears of joy. This is one of he best reads I have read in awhile. I have to say you are so blessed! Your baby is so beautiful! God has chosen you to be that little girl's mother for a reason and may he be by you and guide you while doing so. He will bless you beyond measures untold, for she is a child of God and perfect in every way. Hugs to you and your family and congrats on the new baby.

sunshine said...

I discovered your blog yesterday. It is like a book I can't put down. I have wept through what I have read. Cried happy tears, and sad tears, and I feel for you tears, and inspired tears, and broken tears. Your words broke through my "I am strong" facade. Broken, I mourned. Mourned for the seven years I have tried. For the pain, hope, love, and disappointment. I finally let myself hurt for the fact that at 27 my friends and siblings are having babies and I can't. For now, I shall love my nieces and my best friend's babies. And I will hope with a renewed heart. Thank you.

Leslie said...

As a gift from God, I stumbled across your blog and Nella's birth story. I can't wait to read your book. First of all, gorgeous family! Secondly, my sister in law is 32 years old and has Down Syndrome. She is sweet, hilarious, determined, and stubborn as a mule. Our children adore her and didn't even realize she was any different at all until very recently. I was so touched by your story because it is so similar to the story my mother in law tells of their D.S. surprise. Only it was the early 80's and my father in law didn't even know what D.s. was. So you can imagine the confusion. She told me about crying every day for years, "just for a minute" because she realized what Kylene would miss, but then she realized how much our family gained by seeing things with "brand new eyes." Your family is a blessed bunch and I can't wait to read your story!

DesertChildAZ said...

I can't begin to describe how much your story has affected me and changed my mindset. I'm 41 and having my second child. I'm high risk but I don't want to risk a miscarriage by having an amnio. I've had the other non-invasive tests, but they aren't entirely accurate. When we couldn't get insurance approved on a new expensive - somewhat experimental - blood test that apparently has 99.9% accuracy, we had to decide what to do. Pay for the test or pass on it. I was terrified that we might have a DS baby until I read your story and shared it with my husband. We went from it being a choice to accepting that it could be a difficult but acceptable given...instead of considering the deadline for the alternative, we simply said "Knowing wouldn't change anything." Nella is an inspiration to us and I always call her my "favorite little girl in blogland". Thank you for your impact on my life, on my choices and on my relationship with and faith in God. Though the additional tests now put us in the 1:3200 range, I'm glad that if our child is born with DS, that I'm comfortable with that. God Bless your family.

DesertChildAZ said...

(P.S. We had the standard "additional" non-invasive test (ultrasound, further blood test) but never did the new experimental 99.9% accuracy test because after reading your story, we didn't feel that knowing would change the course of fate so why spare the $1900 expense for the new test? )

Nicole said...

such beautiful little girls and a beautiful story! I can't wait to read your book! Thanks so much for sharing.

Michelle said...

Thank you for sharing your story. You have been blessed with a precious little gift and she is so incredibly beautiful and lucky to have been given to such a loving family. Your courage and strength is so admirable. You will all have such a beautiful life together!
xx

Marcy Smith said...

WOW thankyou so much for sharing your's and your families story. It was honest and beautiful ... those girls are very blessed to have you as a mum :)

danemi1 said...

wow!!!Once I had started reading I just could not stop - I thought things were stressful at the mo - on a merry go round that just doesnt stop - children, hubby, work, cleaning, running errands you name it - all the tales of an everyday working Mum - there I was thinking my word will things ever calm down...how ashamed do I feel now - I have read your story with such I dont know dept of feeling - how and what you went through - your honest true way of conveying it all and we have never met but I felt so what is the right word honoured I guess that you had shared your journey - and how you went from expecting the "normal" to realising how much love, beauty and joy this special little girl can bring and the way your big daughter/sister hadnled it - we can all learn so much through a childrens eyes. I am sending you such humble hugs - what a truly amazingly wonderful family - thank you for sharing this - all I wanna do is go and wake my children, love them and hug them and let them know how much I love them - who cares about a dirty ktichen floor - it will wash - these precious precious times that we spend with our children should be engrained forever in our hearts - I salute you and your family - with lots and lots of love Elaine xxxx

Kadie said...

Thank you for sharing your story. God bless you and your family. You are blessed and i know that your children are lucky to have you as a mother.

Anonymous said...

Nelle is the most beautiful baby I have ever laid eyes on, I could just hug hug hug her!!
In life all we really want for our children is happiness and I do believe that the Lord knew you could provide her with that despite a beautiful indifference.
Baby Nelle deserves you, as do you her.
Thank you for sharing your story, Kelle. You're such an inspiration and I wish you and your family all the best in life!

Ann of the Incredible Gift said...

Nella is beautiful and perfect. *hugs and smiles* Both your girls are.

Your story, linked on FaceBook by my cousin, took me back 40 years to the birth of my daughter, Margret, her diagnosis of DS and the emotional roller coaster of the first days.

I finished reading with tears in my eyes and a smile on my lips.

Margret wanted me to write a book to tell her story, Growing Up With DS, but I'm not much of a writer. I think you should keep blogging, and edit all your stories into Nella's book. *more hugs*

Ramblings said...

Such a beautiful story and so beautifully written x

Vanessa said...

I am obviously reading this years later, but this was the most beautiful, moving piece I have read in a long, long time. Your words painted a true picture of what your heart was feeling. Bless you and your precious family. Thank you for your amazing story.

Strictly Stylish said...

Thank you for sharing this beautiful story! I have read hundreds of blogs and I have never commented on a single one until today. Your story touched me like nothing else ever has. You are an amazing person.
Thank you for this story!

motherbabychild said...

I saw your pictures on Pinterest and clicked to see what a unique shot, and was lead to your blog post. Oh my goodness what an emotional roller coaster you have just taken me on. I thought that I could not imagine such an experience (being so disorientated after delivery, fear of what you know and dealing with it quickly because it is as God willed), but I feel like I lived it with you in just a few minutes. Your friends have captured it all so beautifully. I'm going to end here and browse your blog a bit more.

Hugs & Blessings!

Annie said...

I'm sure that I'm one of millions that would say this. I'm 3 months pregnant and referred to your blog on recommendation from Frugal Living NW. The announcement of your book I thought I'll see what this woman has to say.

What a BEAUTIFUL post, story, writing, it is strictly amazing - I bawled and bawled - but not out of sadness - out of hope. This is truly the story of love and what every woman feels and thinks and worries and wonders. THANK YOU - Thank you for sharing - for remembering - for being so raw and so wonderful.

Washer Mom Val said...

Beautiful.

Melissa at Tall Blonde said...

Visiting your "place" from Katie over at Loves of Life recommendation.

This is a beautiful story and brought me to tears several times reading it.

You have a gift for words. Congratulations on your beautiful family and thank you for sharing.

Kristi said...

This might just be the most heartfelt, gut wrenching HONEST blog entry I have ever had the honor to read. I am in awe of your ability to share such intense raw emotion & unabashed honesty. I keep thinking about the strength & courage it must have taken for you to write your "truth", good, bad and everything in between. As Mothers we are held to a completely diff. standard than any other group. We aren't supposed to admit our shortcomings or let it be known that we aren't the "super woman" that we are expected to be. To be able to admit your heartbreaking struggle over the loss of what you had envisioned is beyond strength. I can only imagine the amounts of guilt and confusing emotions running through you that first night, which, I am sure happens to be one of the longest of your life. This brings to mind the saying "The truth will set you free". Having shared you inner weakness and heartbreak with anyone willing to read had to be completely terrifying for you. Much like a salt shaker dangling over an extremely open wound, not knowing if, under pressure the top would come off and flow unrelentingly over and over and over. Instead, the opposite seemed to have happened. It's your honesty, bravery and ability to tell your "truth", without censor that has resonated with thousands in ways you can't even fathom. Now, with the release of your book & as word spreads I am sure that number will undoubtedly rise & once again immeasurably change the course of many more lives. Your story & the effect it has had is def. a gift from God, through you to all willing to listen. I Thank you for being a soldier. I Thank you for all of the Mothers who have struggled in many diff. ways but been to ashamed to share their own truth. God bless you and I pray you take comfort in knowing that you have made a difference in this world. Your honesty & ability to share uncensored has helped to make this world a more beautiful place. Your Mother & Father should be extremely proud of the Daughter they raised. May God, in his love continue to bless you & guide you through this journey. XO

Janet said...

Thank you for sharing the story of moving through grief into great love for your precious bunny!

Karen said...

I am struggling to find the words to write to do justice to how I feel right now after reading your story. While I cannot totally relate, there are many parts of your story that are all too familiar to me of my story. When my daughter was born last March I was diagnosed with severe post partum depression, so bad that I would have been hospitalized had it not been for the fact that I did not have the desire to hurt myself or my baby. One of the hardest things about telling my story is the honesty of it all because with honesty comes the vulnerability of shame, guilt, and embarrassment. It is in that honesty, like yours, that makes it authentic and real and relatable. I could go on about what our stories have in common, from not remembering moments and even days to wanting to go back to being pregnant when life was still "normal." Although I am leaps and bounds better than I was I still am not completely healed and I still work on my PPD every day. I know how hard it is to relive that time by writing your story so thank you for pushing through that pain in order to share it. You are touching so many lives- mine being one of them. You are an amazing woman and mother and I am honored to have a glimpse into your journey. Choose joy each day even when it's easier not to and rest in the inspiration that you are to so many.

MsMidge said...

Wow. I was just recommended your blog for a good read. Knowing nothing about you or your life/family. I am sitting here (in Australia) at work, my job as a "disability carer" that I have had for 16 years, and have to wipe tears the whole way through reading this post. I am currently assisting 4 wonderful and amazing human beings, who just happen to have been born with Downs Syndrome, to live their lives to their fullest potential. And they make me smile every single day. I look foward to reading more of your posts and I KNOW that life must be full of joy for you! Thank you for sharing.

linseypatrice said...

When my baby cousin was born with DS I just remember my Mum sobbing on the phone to her brother. Thank you for helping me to understand some of that emotion. What an amazing story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

yoganinja said...

your story is amazing. and your daughters are beautiful. I work everyday with special needs adults and I can't explain how they touch my heart and teach me about myself and the world and love. i wish your family all the best . and thank you for sharing your story.

nzTash said...

Hi Kelle - I unexpectedly discovered your blog a few weeks back and have been absolutely captivated! Thank you so much for sharing your life - your words have really touched me, so honest, raw and inspiring. Your beautiful precious wee girls are simply delightful, and they are so blessed to have such a strong, courageous lady like you as their mama. What wonderful family and friends you have - everyone now has a wee place in my heart. I ordered Bloom a few days after finding your blog and eagerly awaited its delivery! There was much excitement as it arrived yesterday morning way down here in New Zealand - some 8000 miles from Florida - its beautiful and I haven't been able to put it down. Love and hugs x

It's a Beautiful Life... said...

Kelle,

Thank you so much for sharing your beautiful story. I want you to know that Dr. Foley was absolutely right. Your Nella is perfect and beautiful. You have been blessed with the most precious gift that God can give you! You have a beautiful family. I am so glad I stumbled upon that book review for Bloom. I bought the book and, literally, could not put it down. It is one that will be reread and shared many times.

xoxo
Courtney

marianne leonora said...

wow,i am moved to tears. what a litle wonder of god she is. soo beautiful and perfect. and sooo lucky to have you as her mom!

greetings from norway, Ã…sne and mother of five.
www.marianneleonora.blogspot.com

Yaseen Abbas said...

Welcome to this world you little guest when you grew up don't forget your mother. On every occasion give love and gifts to your parents.
Because they need you ans you need them.

gifts to pakistan
gifts to pakistan
gifts to pakistan

Yaseen Abbas said...

Welcome to this world you little guest when you grew up don't forget your mother. On every occasion give love and gifts to your parents.
Because they need you ans you need them.

gifts to pakistan
gifts to pakistan
gifts to pakistan

jovana said...

thank you.

Kandice said...

I don't even know how I found your blog, but I did. And I just read this post and I am lying here in my bed, sobbing and wiping the snot from my nose. This was one of the most beautiful, inspiring, love-filled blog posts I have ever read. Now I'm going to have to go back through and read all the way to the beginning. Thank you for sharing your gorgeous family with us and for your beautiful honesty.

CyndivdB said...

Reading this has made me sob ungaurded tears - you are truly an inspiration. Your honesty, clarity and powerful love has overwhelmed me. May your little girl continue to be a shining light in your lives. You are blessed.
Thank you for sharing your pain, sadness, happiness and above all, your love.

Mary A. said...

Thank you so much for sharing your story! You have two beautiful daughters and reading about them has been a tremendous blessing. Earlier this week, my husband and I found out that we're expecting another little girl- and that my quad screen came back with an elevated risk for down syndrome. It's not a definitive diagnosis, but it definitely has given us a great deal to think about. I felt so many emotions in the time span of that one prenatal appointment. My thoughts went from envisioning my two perfect little girls playing together to will I be able to handle this? Because of this blog, my thought process has now shifted back to envisioning my two perfect little girls playing together- regardless of whether our daughter is born with down syndrome or not. :)

Ashley said...
This comment has been removed by the author.
Alyson said...

What a beautiful story. I found this page through a Facebook site - it was posted on a comment for a new mom looking for support because her daughter has Down Syndrome. I hope you realize that your bravery is helping others to cope, come to terms, and explore their emotions. What a gift you have given to other mom's whose little ones are diagnosed with something foreign and scary to mom. And what a blessing you have in that amazing support system! Thank you for sharing your journey, mama...you have blessed us all with it.

Adriana Hartley said...

I don't know I found your blog - but am so lucky I did. I love your soul and how you write and how honest and authentic you are. Your life story is beautiful and thank you for sharing it and touching others. Namaste.

nicole addison said...

she is the most beautiful little thing i've ever seen. that smiling face! congratulations, what an inspiring story. best wishes for your amazing family.

amycornwell said...

This is absolutely beautiful. Tears flowing down my face, you've written your story so perfectly. God bless you all!

lbianc said...

Thank you so much for sharing your story/journey with us! Finding your blog and reading your story came at the perfect time...I have been struggling with my daughter's diagnosis (Patricia 4 mo. old). Less than 12 hours after she was born, my OB and a pediatrician on call walked into my room (just me and her) and let me know that she had Down Syndrome - I was shocked at both what they were saying and that they would give me that kind of news without anyone there to support me. I was devastated! However, later that say, a CHOP cardiologist came to let me know that she had Pulmonary Valve Stenosis and thought that she had Noonan Syndrome(which ultimately was the correct diagnosis). So I am still dealing with all that has happened (including heart surgery at 2 months) and trying to let go of the perfect little girl I had in my head before Patrica was born. Reading your blog (and eventually reading your book) has already helped me to try to look at things differently!!! Of course I love my baby more than life itself, but I need to be in a better place for me and my whole family. So thank you again for opening up to everyone and helping so many people...you certainly did that for me!

Lisa Griest (lbianc22@hotmail.com)

Natalie said...

Kelle I've read this post so many times, and continue to share your blog with my readers, but I'e never commented, so here goes.
This post is nothing but pure white brilliant love.
Nella is such an amazing, strong, funny, beautiful little girl - it's quite strange to look back at her entrance to this world. I wonder what you would tell the you of two years ago now, knowing all that now know.
Thank you for the sunshine that you share - you a free and wonderful soul.

Irene Western said...

I'm on page 194 of "Bloom"...and sweet Nella is peeking at me! Your story has made me laugh and cry and reflect...and relive the moments when my babies (now 21 and 16!) were born! I LOVE your "village" of support and love you have! I'm torn now between wanting to read, read, read it constantly and taking it s-l-o-w and savoring all that you want us to learn from this wonderful story! THANK YOU for sharing you with us!

Adrienne said...

Just came across your blog through a friend and I was blown away by your story, your photos and most of all your words. Growing up with a brother who has Down's Syndrome, I can tell you that you will have rough days, but the love they display will far outweigh anything else. Your doctor sounds like an amazing person and I am so glad that public perception has advanced so much recently. My mother was told by her doctors that my brother would never read, write, walk, talk or eat on his own and should be institutionalized. He does all of that and so much more. I look forward to seeing what Nella's life has in store. God Bless.... :)

Daniela Stevens said...

Sheesh!!! How good are you? Blessed beyond words imaginable. Big sister never knew the difference and oh how she adored her instantly!!! This story is priceless, thank you so much for sharing your life with us. Much love Xx Dani

Melissa Sweet Society said...

Thank you so much for sharing your amazing story, you are an amazing woman with so much love to give your precious girls... And that's all you need, love! Whenever in doubt that's all you have to remember. I have a child with Aspergers/chromosome abnormally and I knew when he was born something was not right but relieved when I found out what it was. Through all the grief and early intervention the thing I held on to most was how how much I loved him... now he is a beautiful 8yr old boy xxx

MystaRei said...

I love your story and I think sweet little Nella is so so cute. I love her little face! I think when I had my son I felt i was in a similar space- i had envisioned something so different to the lanky skinny stressed out baby they showed me before taking him to the nicu. I felt guilty for not feeling that overwhelming love that everyone describes but have found as the days have passed and we've gotten to know each other my love has grown and i can't picture life without him now! I seriously think breastfeeding him has helped us to bond also. Congratulations to your family though, i hope you're all settling in as a family of 4 :-) xxx

Liz said...

What a beautiful story, Kelle! I discovered your site through another blogger I follow and her recommendation was to read this post first. I read it with a heavy heart & tears streaming down my face. You told the story beautifully and Nella is divine, perfect and so incredibly blessed to have been gifted into your family. God knew YOU were the right people to love, nurture and raise her.
I look forward to following your blog and your story as you walk this path called life. You are an inspiration!!

David said...

We just found out today that our Daughter has Down syndrome. She was born last week. She is our first. Two of our friends recommended this blog. It helped a lot to realize that everything that we have been feeling is normal for our situation. Thank you for writing your story.

kristenklingbiel said...

Kelle,

Your blog post was a reading assignment for a class I'm taking. I have no idea how my professor came across it but I must say I'm glad she did. Your story is one of redemption so beautiful and moving. Thank you for writing. Even strangers are praying alongside you, and this one is going out to buy your book today.

Warmest wishes from Wisconsin. :)

Angela Donvenekham said...

I really related to your story. I have been through something very similar except my son has very mild facial features and his DS was not detected at birth. I remember feeling the same feelings as you and I remember how dark that time of my life was but we got through it because we loved our little boy more than the world.
You were very lucky to have a doctor that was so loving and caring when you got told the news. We weren't so lucky and we were left feeling empty and cold.
Thank you for sharing your beautiful story. I cried throughout the whole thing.

Kelly said...

I sobbed through your entire story. I wish I could put my words together like you do. Just beautiful.

Nani said...

This is amazing. Love how you describe all those feelings. You were honest, deep, and loving. I just cried my eyes out. I believe Nella chose you to be her mother, she knew you were going to be the perfect mother for her. Congratulations!!!

TheAlmostFoodie said...

I stumbled upon your page from Harper's Happenings. I am so glad I did. There are no words for the emotions I felt reading Nella's Birth Story. Your honesty was refreshing. God bless you and your beautiful family.

simplycontemplating said...

What a beautifully painful story. In college I used to babysit for a student wives group and one little boy named Sammy had down syndrome. He was my favorite little guy and taught me so much about life. I loved that boy. May God bless you and your family on your journey.

mimtessa said...

Hi, Thank you for sharing your story. I found a link for this blog via momastery.com

The date you wrote this captured my attention. On January 29, 2010 I gave birth do my daughter, Brynn Tessa Foley.

Sadly, she did not have a heartbeat. But, she has changed my life as any child changes her mother, and I am so grateful for the experience.

Muhammad Atif said...

Its really nice story about wonderful gift, Send gifts to Pakistan from UK.

Katie Meg said...

My friend led my to your site- and I just wanted to say thank you. Thank you for telling your story. She sent it to me because I have a 33 year old brother with Down's Syndrome. We are in the process of adopting and feel like God may be getting at some places in my heart long hidden; trying to open it up more to being fully open to adopting a baby with Down's Syndrome, if that is His plan for us. I don't know for sure, but many "coincidences" seems to be lining up. For now, I will soul search and open palms up. Read Nella's birthing story, and the hidden places of grief and crazy hope start to open. Thank you.

Aleksandra S. said...

You are simply amazing. Great foto!

Pozdrowienia z Polski :)

Muffin said...

Tis is an amazing story. Thank u so much for sharing. About 18months ago I gave birth to a stillborn baby girl withturner syndrome. I'm sure I cryed just about as much as you, but can't imagine the pain you felt knowing you neede to raise this child. I cried reading this whole story and my heart ached for you. But you wrote the words so delicately and gracefully that I felt as though I was in the room with you feeling every emotion you felt. You are truly a blessed woman to have this opportunity to raise this child. God has something grand in store for you and Nella. Thank you again for sharing.

Zachary and Sarah @ High Heels and Grills said...
This comment has been removed by the author.
Sarah said...

This was the most inspiring blog post I have EVER read. {and believe me, I've read a LOT of blogs} Thank you for showing me what really matters in this crazy world. We need more people like you.

Anuu said...

Truly amazing!! Your girls are so beautiful, real blessings from God!! :) They are also blessed to have a beautiful family :-) God bless your family abundantly!!!

joanne bryant said...

I loved this story. Came across your pictures on instagram. Nella is so cute- I found myself thinking what a blessing it would be to have a downs baby. And then I decided to visit your blog. Nella's birth story was so moving. I understand the feelings you described in the beginning, followed quickly by so much love. My daughter was born with a cleft lip and palate. I faced similar short-lived negative emotions followed by overwhelming love upon meeting our sweet baby girl. We are enjoying every minute. And it seems like you are too. Lucky girl, sweet Nella. She has touched so many lives without even trying! Keep sharing your wonderful story.

Sonya said...

Thank you for sharing. I cried a lot because it was so much of what we felt when our daughter was born 9 weeks ago. Thank you for giving us a glimpse of this new world of parenting our precious Glory may look like.

Ann said...

What a moving blog. But you have 2 lovely little daughters, who are loved and love each other, they will enjoy their cupcake making/playtime/growing up togther.
Hugs.

Saving4Five said...

I'm 32 and 13 weeks pregnant. I've often wondered what it would feel like if something was wrong. I hope that if that happens I am even half as strong as you. I cried though your whole story. Nella is blessed to have you as a mommy. Thank you for telling your story and being real. I wish you all the luck in the years ahead.

Karen P said...

You were chosen to be her mama; you lucky girl!! ( I will not cry anymore and I so love your story)

Fiona said...

Your daughters are gorgeous. And your friends and family are amazing! You are one blessed woman. Thank you for sharing this story.

The Beauty Bandits said...

this was honestly one of the most beautiful stories i have ever read....thank you so much for sharing <3

Marcella Fisk said...

Such an amazing story!!! Thank you so much for having the courage to share your experience... And Nella is beautiful!!

SP said...

Hi, I cried all the time while reading the story of the birth of your little girl. I have a 18 month little girl,named Dorothy (means gift from God), who was born with hand deformity. About half of her right hand is missing have only one 'normal' finger on that hand. And we, as you, only knew it at birth. Besides, at birth her hormone levels were all over the place and the doctors couldn't even tell us for 100% if she a boy or a girl. We were sitting at the side of the hospital bed, trying to find out what to tell our friends and relatives during the week (waiting for the DNA) we can't say if it's she or he. They were taking blood samples from her 'good' hand every day to check out the hormons. I remember telling the doc in tears to leave her hand alone, and take the samples from her feet. You are in a different world just after the birth. Since than she grew into the most beautiful little girl. She manages very well with her ‘bad’ hand. I feel so blessed that I had her. Without her I wouldn't experienced a lot in life. I wish you the best. Love, Suzanne

KittenKC said...

What a beautiful story! And you really are special b/c you were chosen to be this beautiful little girls mother. Not to be too religious, but God would never hand us more than we can handle. She is his blessing. Congratulations on your beautiful family!

Olivia Cole said...

I love this so much. Thank you for sharing your story with us (I just found your blog through Pinterest!). My nephew is 9 months old, & he, too, was born with Down Syndrome, & it was a complete shock. I am a nurse, and I knew as soon as I looked at his sweet face. You do grieve over the loss of what you expected, but then there is this perfect, precious, amazing, sweet, beautiful, HAPPY little soul that God has entrusted to our family (& yours & many others), and I feel such gratitude. We worry about what his life will be when he is older, when he starts school, & he has some health problems, but mostly, there is joy & love & gratitude. <3

Christine Marie Fanestiel said...

I can't tell you how touched I am by your story. You didn't sugarcoat the truth about how you felt and what you went through. Until you've been through an experience or been close to someone who's gone through an experience like this, you just can't understand the trials and tribulations that parents with Down Syndrome children go through.

A close friend from church gave birth to a little girl with D.S. and they ended up spending weeks and weeks in the hospital when she was born because she had a hole in her heart (that thankfully God healed without the need for surgery) and she needed a feeding tube and more. It was a very trying time for them, especially while trying to make their 3-year-old little boy still feel important. Seeing them so broken was tough but we just had to have faith that God had a plan.

Slowly she healed and God worked His miracles on her and the family. Now she is a beautiful 4-year-old little girl and every time someone sees her a huge smile comes to their face. You forget all those weeks of fear that she might not live through the night and all you see is happiness.

Life isn't always easy, you have bad times along with the good, but, with a little faith, you make it through.

Jenna said...

Thank you so much for sharing your story!! I'm pregnant now with our fourth. My husband and I felt strongly about this soul coming into our family. I often think about this sweet baby being born with a disorder. Your story puts me at ease. Knowing that it's an opportunity to be a momma to such a special soul. I can't wait to hear how she is doing and the rest of your precious crew.

Sarah McMurray said...

Kelle, I found your blog on Pinterest of all random things...but I have to tell you reading your story about your beautiful family and sweet little Nella rocked my world. It reminded me that each of us is perfect, as we are; we have so much deep value and preciousness...I needed that reminder. Thank you sweet Nella, for reminding me. Prayers and hugs to you all! Congratulations!!

mommab said...

Thank you for sharing your most private thoughts with the world. I too am a Mom of a special needs child. The fear, the joy, how it changes your whole world and becomes something entirely different than you imagine, but you wouldn't change one second of it. God doesn't give you any more than he thinks you can handle. Have you ever read "Welcome to Holland"? I hope all is well with you and your beautiful family!

Seth, Ash, and Arailia Hendrickson said...

I found your beautiful story! You have inspired me! As tears run down my face I feel the love of this precious little baby! She is such a beautiful baby!! Thank you so much for sharing her and your story! I know it will touch many hearts as it has touched mine so greatly!!!

Becca said...

She is sooo beautiful! SO BEAUTIFUL. Both of your girls. Nella is a sweet, sweet blessing. I'm so grateful to have read your story. A reminder of everything to be grateful for.

Leroy said...

your daughters are gorgeous!

my 21 year old big brother has downs syndrome. i promise you -- i've never met anyone with a bigger heart than him. if there's one thing i've learned from being with him and other kids with downs it's that they are the most loving people. your daughter will unconditionally love you, the rest of your family and the friends she will meet along the way. i know there will be difficult times but there will be even more beautiful times. you are both lucky to have each other.

Mommy said...

I have read this beautiful story before, but today the Dr. told me that there is a very large chance that one of my twins, my baby b will have down syndrome. I knew I had to read this again, because I have to be there for my child, no matter what. I lay here in my bed, and need a new pillow for tonight as mine is now soaked in tears. Thank you for your beautiful words, God bless your family and precious nella cordelia.

Kayleigh Gilman said...

Thank you so much for sharing your story. I've cried a thousand tears. You inspire me.

themrsscott said...

this is possibly the most beautiful story i've ever read. thank you so much for sharing. your girls are beautiful and precious gifts. you are truly blessed.

Unknown said...

You are the perfect momma for sweet, sweet Nella.

Lauren Perry said...

Thank you for sharing this. I think a lot of parents would not want to share the emotion that would come along with the shock of shattered expectations, and would instead share only the love and joy that comes from a baby... no matter how that baby comes into the world. Your story is extremely powerful and I hope that any new parents with babies who aren't "normal" will read it and know that they are not alone.

AmyClark said...

I found this through pinterest. Wha an amazing story of courage, love, and acceptance. I just cried and cried while reading this. It was heart wrenching, but very beautiful. Thank you for sharing your bunny's story. She is a beautiful baby girl.

CherryTrigg said...

You have wonderful and beautiful girls. I am so touched by your story... I am having trouble conceiving and I am getting older and Downs Syndrome risk get higher with age, I am now 34. Your story has touched me so profoundly and makes me realize that no matter what, our children are gifts

Rachel Helms said...

Such a beautiful story! Bless your heart. May God bring you much love, laughter, and joy throughout this journey. Nella is such a beautiful and perfect baby girl and she is so lucky to have been blessed with wonderful parents. Thank you so much for sharing your's and Nella's story and for being an inspiration to others!

elle said...
This comment has been removed by the author.
elle said...

Kelle, I have not cried this much for as long as I can remember. From the moment I read "love me. love me. I am not what you expected, but oh, please love me", tears streamed down my face and I sobbed out loud for the rest of the read. You are an amazing writer, and so inspirational reading every detail on how you got through it all from the moment you realised Nella 'wasn't what you expected'. I am currently 22 weeks pregnant with my first Son. The thought of him being born with D.S has crossed my mind plenty of times, and wondering how I would cope. But your story has inspired me, to realise I CAN and WILL love him no matter what.
Thank you so much for sharing such a heart-wrenching yet beautiful story with us all.
You are an incredible woman with 2 gorgeous little girls.
Elle

Kat Downs said...

This is why women should have babies when they're YOUNG. You know, they have tests that could have found this defect. *shakes head*

Ashleigh said...

I stumbled upon your blog while I was doing research in preparation for my daughter's birth after learning she would have Down syndrome. Your blog has been very inspirational. Leila joined our family last week and we are very much in love with her and are looking forward to watching her grow up strong and beautiful. Thank you so much!

Gianluca Gentili said...

Forgive my bad English but I really wanted to leave a message in your blog. Marco, my son, was born last June 4th and it has the DS. I'm still full of pain and anger althought all bad thoughts seem to go away when I hold my little guy. My bigger son Alessio, he's 8 years old, love him. My wife seems to have left all the bad thoughts behind, I still have to reach this goal and I have to thank you about your blog. It's amazing the way you write down your feelings and show through the pictures the way Nella is living a really good life full of good things and love. I also love photography but since a couple of week ago, I wasn't in the mood of taking pictures anymore, now you get me inspired again. I wish you, Nella and all your family and friends all the best world has to offer. Gianluca from Rome (IT)

kisimyran said...

What a beautiful, beautiful thing. thank you so much for sharing, tears are rolling and my heart is overflowing with happiness for you and your family, although we are strangers you are the proof I needed that honesty and love are the only things needed in this world. I wish you and your wonderful, beautiful family all the best and continued unconditional love, health, and joy.

AmandaJJones said...

You are an amazing and brave woman. This has to be the most beautiful story I have ever heard. Thank you for this.

Rebekah said...

I now know why i was awakened at 4am. I checked momastery, and that led me to you.

Its been almost 12 years since this day for me, and reading this post had me heaving silent sobs into a paper towel, for a very long time. (staying with friends and fighting to keep quiet.)

The picture of your face right after the pediatrician delivered the news. I know that face, and the thoughts behind it. And your husband, so tender. It broke my heart yet again.

That raw gratefulness as a daily reminder is such a gift. I barely remember my life before Cade, it was horribly perfect.

The sentence I tell friends often,
"For the rest of our days, we will keep each other broken and whole at the same time."

Thank you for this early am grace-filled reminder.

Rebekah Lyons
http://www.qideas.org/blog/to-cade-and-the-eight-percent.aspx



Ashley said...

Kelle,

As I sit at my desk at work, I am completely overwhelmed with emotion. A coffee break on pinterest turned into a journey with you and your family. Since I was little, my biggest dream has been to be a mother. Of course we never know what life has in store, and at 25 I have at least a few more years before I will begin "trying." My biggest fear has been to have a child with health complications because I waited too long. Statistics show that having children after 30 greatly increases this chance. At first, your story terrified me. By the end, I felt so much respect, hope and love for your journey and your candid way of sharing it that I realized, my fears are irrational. Thank you for sharing. Both your girls truly are beautiful! Congratulations. <3

Ashley

Deniece Carmean said...

I've heard about your story from my daughters for a long time. I've seen your book and I follow you on IG. This is the first time I've read your story. It is beyond moving. I felt a few of those tears when my grandson was diagnosed with Autism. But we are all so blessed and thankful. Thank you for sharing your story of Nella.

Deniece Carmean said...

I've heard about your story from my daughters for a long time. I've seen your book and I follow you on IG. This is the first time I've read your story. It is beyond moving. I felt a few of those tears when my grandson was diagnosed with Autism. But we are all so blessed and thankful. Thank you for sharing your story of Nella.

Amanda said...

This is the most beautiful, honest, and moving story I have ever read. My heart broke and burst for you.. you have an amazing, blessed journey ahead.

Unknown said...

The journey of a mothers heart. Knowone is able to understand the depths of our soul when it come to OUR babies. Your journey is just beginning and the life you will share with your sweet baby. I love what you have done here. I am the mother of a fallen hero. My jorney with my son is complete on this earth. If I had only written my thought down over the years they would bring me comfort now. Shawn's story
Lcpl Shawn P Hefner - Hico's Hero -CNN iReport
ireport.cnn.com/docs/DOC-449090
www.HicosHero.org
healing for you and others in the written word - thank you
Robin Hefner
Proud Gold Star Mom
LCPL Shawn P Hefner

Megan said...

She is absolutely gorgeous!!!! I am in awwww! And I just wanted to thank you for being so honest and real.

Amy Belmonte said...

I know there are over 3000 posts and your probably wont even see this little one ( lol) but i am a 23 year old who is struggling with alcoholism. i just came across your story and i cannot stop crying. i love your daughter already. she is an amazing miracle and your family is beautiful on the inside and out . I hope i can overcome this disease and have a family as beautiful as yours one day. god bless you and your family . <3 amy

PollyKlein said...

Thank u so much for sharing .... I Love the pictures your Friend had taken. Nella is so cute and delightful. Best wishes for you and your two Perfect Little ones!

Katie said...

I don't know you and I'm not even entirely sure how I stumbled upon your story but I wanted to say thank you for sharing such a beautiful blog. You are an inspiration.

Keryn said...

You'll never read this--comment 3,500 and something--but I just had to write how grateful I am for your honesty, for your story, for your skill at writing. My night of sorrow happened at the 20 week ultrasound, and it was a different diagnosis (spina bifida and hydrocephalus), but it was real and raw. Your description brought tears to my eyes because it was so true, all of it, and now I can't imagine life without my little almost-six-year-old...but I wanted to run away, that August afternoon, with my two older kids and my perfect pregnancy and my idyllic life.

Yet that is the life I have--well, with five kids now--wonderful, perhaps not as idyllic, but infinitely more meaningful. And you brought it all back into focus for me with your words. Even between homework and we-have-scouts-so-pick-up-your-shoes and all, I am so grateful for my blessings.

Thank you.

Just Jen said...

What a beautiful, amazing Love Story you've written here. A unique wonderful love story, the beginning of a new life in the birth of beautiful Nella, the love of her sister and the love of her parents along with all whom love and support you. Thank you for sharing such a beautiful, raw, honest moment from your life.

_Eve_ said...

What a truly beautiful story.

My little sister Stephanie was born when I was 3.5 years old and she has been by far the biggest blessing in my life. She has Downs and everyone I know can't help but love her. She is so full of pure love and joy. She's got a personality that lights up the room and a memory that will get you in trouble.

Nella is precious and Lainey looks like she will be a great big sister. It's really a blessing to be the big sister of some one with DS.

Your story, like many commenters, sounds much like my own Mother's (which I learned the particulars of many years later).

It can be very painful to love someone so much who will face challenges. I can't fathom it from your position, but I do have an idea. However it sounds like love abounds in your household. I am so glad to read stories from people like you. You are deserving of many blessings.

Auntie Ali said...

I am in tears. Tears for the unconditional love you have for your children. May God bless you all with endless love, patience, hope, faith and may every day be as beautiful as the next.
Sincerely,
A touched reader who stumbled on your story. I'm forever changed.

hikerchica said...

Kelle,

I don't know you but I am 4 months pregnant.

Thank you so much for sharing your story. It is both incredibly inspiring and breathtakingly beautiful.

You are so blessed.

-Jen



Ann said...

This story is amazing. Thank you for writing it. The funny thing is, I am due January 29, 2013 and am reading this years after you wrote it. And loving every word you said.
Thank you for sharing your honest story. It is amazing.

queenOprincesstrio said...

Your story is wonderfully written.

And your precious baby is the most beautiful I have ever seen!

What a sweet journey you are embarking on! Much love from a stranger as you get on your way!

Kelly Loves... said...

I love your Bunny's sweet baby smile. Your story brought tears to my eyes.
I am so proud of you for instinctively knowing that you had to mourn your loss of what you imagined in order to be ready to celebrate with a free and open heart.
I'm a mom of 5,3 with special needs, I understand how important it is to allow ourselves some grace.

Patty said...

I just found your story today and was so touched by it. I will be sharing your post with good friend of mine is a momma of a beautiful little girl like your Nella who is about the same age as she is now. She too is a beautiful brave momma of a perfectly beautiful gift of a daughter just as you are.

Your words are so beautiful and powerful. Tears were streaming down my face as I read...your account took my breath away as you shared your mourning of the loss of the baby that was envisioned and how you fell hard in love with your beautiful Nella.

Thank you for sharing your story and the deep places in your heart with us.

Kate Sanders said...

That was such a heart-warming and beautiful story!

Katiebttns said...
This comment has been removed by the author.
Katiebttns said...

I saw a link to your story on Pinterest, and as a nurse who works in a birthing center and the neonatal ICU, I was drawn in by a picture of Nella with a caption of "incredible story. warning: break out the tissues before you start reading!"

To be completely honest, I started reading, realized it was going to be long and selfishly thought, "I don't have the time for this." So I just scrolled through, glancing at pictures, until the words "down syndrome" popped out at me. I immediately scrolled to the top and started reading every word. It was after nearly five years of working with children who have developmental delays that I went to nursing school to do more for this population, so to see my passions coming together pulled me right in.

Thank you for your honestly, your courage, and your willingness to share this with the world. After realizing that little Nella must be nearly three now, I wouldn't be surprised if you have seen this or if someone else has posted it (over 3500 comments!), but I feel compelled to share it with you nonetheless:

WELCOME TO HOLLAND

by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.


You have two beautiful, wonderful daughters. And they have one beautiful, wonderful mama. Thank you so much for sharing your story, Kelle.

Karlene Hamm said...

Beautiful!! Cried like a little baby!! What a blessing you have!!

Cahli Heath said...

Such a beautiful story. Your daughters are perfect. They will both grow to be beautiful intelligent and strong women. You are so blessed. Thank you for sharing your story and letting me cry with you and feel the pain you felt and the joy you will continue to feel. May God continue to bless your perfect family!

Madi said...

Wow. I just read the whole birth story and I nearly burst into tears myself. But I am so glad Nella was gifted with parents like you and I can't wait to hear how God is going to use her life! I met a little boy with Down Syndrome this summer and you could instantly tell. But I also talked to him and he was very fun to be around! Nella's life will not be the usual- but that's what makes life fun, right? She truly is a beautiful baby!

-Madi

Dayna Hickman said...

This is beautiful. I cried. The fact is that my cousin has DS. She had/has many more health problems than your baby, but my aunt chose to love her anyway. Precious. Precious. Precious.

vww said...

Congratulations on your two beautiful babies. You are an amazing Mum to have told your story so honestly. I know it will give support to others who are going through the same emotions.

Sarah B. said...

What a powerful and beautiful story. Your heartbreak, your acceptance, and your love was wonderfully placed down here. Nella is a lucky girl and you are a lucky mama with two beautiful children.

I Sell Shakes said...

Wow...what an amazing story. I am in love with baby Nella, you, your family, your friends, your dad! LOL! I pray so many wonderful more stories and blessings for this precious little angel God has given you to raise! With this kind of love around her...she will be a ROCK STAR!!! Thanks for your courage to share!

Paige said...

I sobbed as I read the beautiful words you wrote. The honesty was incredible, and the pictures of your beautiful girls were inspiring.

Shea said...

I just found your blog today but feel like I've read this birth story before. It's possible one of the other blogs that I follow shared your story back when Nella was born. Anyway, just wanted to say that Nella's birth story was absolutely beautiful, just like her! :) I'm now off to read more in your blog!! :)

mikechat said...

What a BEAUTIFUL and inspiring story. My heart is touched in so many ways. May God bless you and your precious family, your girls are gorgeous!!

S Sinha said...

You are such a beautiful family! God bless you all.

victoria kelly said...

I think you are amazing. This story warmed my heart. Your honesty is truly beautiful. My mother left me and my four siblings at a young age and I have always been afraid I’d do the same. Your story has shown me the power of a true mother’s love and I am truly inspired by you.

Jenn said...

I came through your blog through your most recent post about DS awareness, and immediately clicked on your birth story. It was beautiful. Powerful. Amazing. -- I am a new mama myself and this is such an amazing testament to love, its inspiring. Thank you for writing this. <3 Nella <3

Rebecca Rivas said...

What a beautiful story...my older brother has down syndrome. When he was born he was taken away from my parents and the doctor suggested he be institutionalized. They said (hell) no! He is the best big brother I could ever ask for. I'm so glad times have changed and there is acceptance and love waiting for babies with down syndrome. - RR

Susan Struck said...

Congratulations! Thank you for writing this beautiful story of love.

Tracy said...

What a beautiful story, thank you so much for sharing...You are such a special person

morganramirez.com said...

Wow! This is absolutely beautiful. Im at a loss for words. Your family is perfect!

alilacole said...

You don't know me but i found this page on pinterest. I had a similar experience with the birth of my second child. I had a perfect pregnancy and a perfect delivery but right away I felt something was wrong. My baby boy didn't act right, always slept. He was rarely awake and i kept trying to get people to realize something was wrong. When my son was 4 days old he stopped breathing while in my husbands arms. My whole stopped!!! I screamed for him to wake up and slapped his feet and finally he started breathing. 2 days later we discovered he had epilepsy. It took a while for me to accept that my perfect world was changed now. He is now a healthy 2 year old and he has been seizure free for 19 months. I am so grateful god chose me to be his mother:) You are a strong woman and I am so blessed to have read your story.

Ashley Keheley

Coley said...

I'm not sure how I stumbled upon this story, but let me tell you, I am so glad I did. Your bravery, courage, and love came through in every word. Thank you for having the strength to tell this beautiful story. May God continue to bless you and your beautiful family!

AliciaG said...

This is the most beautiful story. You are so honest and real with your emotion! I literally am at work crying after reading how amazingly beautiful this story is. Your little girls are very lucky to have you as a mother! Congratulations on your beautiful little bunny, Nella! I look forward to reading more from you!

Jeremy and Naomi said...

Wow, what a wonderful beginning to your story with so much more greatness to come! You and your daughters are BEAUTIFUL! I cried thru your whole story!
I come from a family of 10, I'm #8, my mom had a "surprise" pregnancy 7 years after #9 and my youngest sister has DS. I was only 9 when she was born so I didn't understand, I didn't understand why my oldest sisters were crying and upset, I got she was different but not really how. I remember being proud of my sister and very protective of her over the next several years. We had so much fun together growing up, quite the little personality:) She is going to be 23 this month and what a fine woman she has become - so much love and so very thoughtful of others:) Anytime I see a child with DS I instantly feel love for them and feel the urge to cry, not out of sadness but because they have such a special spirit they just touch my heart. Blessings to you and your family! hugs:)

Julianne Donaldson said...

Thank you for sharing your beautiful story. You lifted my soul and reminded me of what is really important in life. God bless you and your sweet family.

Brandi said...

Welcome to Holland! I've been here for 17-1/2 years. I'm a mom to 4 kids (20, 17, 14, and 5). My daughter is 17 ... she was born with Spinal Muscular Atrophy. It has only taken me 2-1/2 years to find you and say hello ... and welcome you and your beautiful family!!! I held it together reading Nella's birth story ... until the very last line. Then I lost it. Completely. You are so very right ... you were chosen because Nella needed someone just like you to be her mommy. You will form a bond with Nella that, believe it or not, grows stronger and deeper and more complete each and every minute of the day. You will know her better than she knows herself. You will know her better than you know YOURself. You have been blessed with something very powerful ... you are now able to see all of the little things that everyone living in that "other" place will never be fortunate enough to see. Those of us in Holland appreciate EVERY little thing ... and then some. We are able to take things slower and breathe EVERY little thing in. Life becomes much sweeter for us here. Of course, NO ONE believes this at first ... but the longer you're here, the easier it is for you to see that Holland is a very special place full of the greatest group of people on Earth. And there truly is nowhere else you would rather be. Welcome to my Holland family!

Brandi said...

I just have to say that I'm LOVING reading all of your posts. I do believe that your blog is officially my most favorite one. I started out with Nella's birth story, but quickly see that you've embraced Holland and are showing the world how beautiful life is here. Thank you for sharing your experience!!! I'm going to enjoy getting to know you and your family through your blog.

Kelby Lou said...

I stumbled upon this this afternoon with only the hopes of being distracted from midterms. Little did I know, it would completely change the way I look at life and opportunity. Thank you so much for telling your story (and Nella's, of course!). I am in undergraduate school, hoping to go on to medical school to become a pediatrician, and it's stories like this that only make that passion stronger. I am thankful for children like Nella, who make you realize what this life is truly about - showing the unconditional love of Christ to others.
May God bless you and your beautiful family.

YariBella said...

All I have to say is that your family is just perfect! God bless your girls, your husband & you =) Your story brought tears to my eyes, not sad ones, but ones full of happiness to hear your story. I am only 24 years old but I hope that if that were me one day that I would be as strong as you.
GOD BLESS! <3

Alta Robinson said...

I feel truly blessed just to have read your story. You and your family are amazing. Your friends are so strong and supportive. You are all truly blessed. Thank you for sharing. Please continue to post. I would love to see how your family pulls through. Such strength...Such heart...Such love...

Tina Iliff said...

I just found your story on Pinterest. I have to tell you that I cried all the way thru. I truly think this is the most beautiful story I have ever heard. You really touched my heart and I just want to say that she is perfect in so many ways!

Tina Iliff said...

I just found your story on Pinterest. I have to tell you that I cried all the way thru. I truly think this is the most beautiful story I have ever heard. You really touched my heart and I just want to say that she is perfect in so many ways!

Meaghan Williams said...
This comment has been removed by the author.
Meaghan Williams said...

I know this is a few years too late but you're story is very touching. My baby sister was born with down syndrome 9 months ago and the emotions you described were experienced by us as well. Thank you for sharing

Nicole Stoen said...

Beautiful, inspiring, lovely words. The honest, raw truth of your experience is so moving. I am certain that your daughter will have a beautiful life because of her loving family.

Cinde said...

Thank you for sharing your beautiful story. I have tears in my eyes and have been reminded of what truly matters in this life... family and love. Best to you and your sweet family.

Ashley said...

https://www.facebook.com/pages/Juno-Lucina/107125209427796?sk=app_28134323652

You should enter this contest! You deserve that beautiful necklace! If you decide to enter tell them First-Time-Mommy.com sent you!

Tracey Howard said...

Such a beautiful love story, you are truly an inspiration. I thought you might like this:

Welcome to Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......


When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Emily Perl Kingsley 1987

Brian Pla said...

God bless you and your beautiful girls. As I wait for the birth of my daughter soon as the unknown looms as a possibility because of a genetic precursor... I almost refused to read this blog. But I am glad I did, I now know that I am ready for whatever God gives us. I now know that I will love her no matter what.

Thank you for sharing your story with us, I felt every pang of emotion as I read. It was hard not to cry at work... thank you for your strength and your love.

That is what I felt most of all, felt it in my own chest, in the depths of my heart, I felt your love for that child. God bless her and you. Thank you.

Lexy said...

I don't know you, but I think that this is the most inspiring, precious story. Thank you so much for sharing your story, you are amazing and I feel blessed just hearing it.

Emmy said...

I'm so glad you shared this story. I want to share mine with you quickly - I am the younger sister of a beautiful woman with down syndrome. She is the sweetest, kindest, most loving soul I have ever had the grace to know. Yes it's different. Sometimes rough. But know that the more love, support, and energy you put into her, the more joy and love she will give back to everyone around her.
You and your family are so blessed to have her in your life (as I'm sure you know now).
Congratulations on your gorgeous and amazing baby girl.

misty Crawford said...

Was setting here sipping on my morning coffee and multi-tasking with my 2 1/2 yr old and pinning some stylish outfits for my imaginary wardrobe, I happened by the most beautiful photo's of a sweet baby girl. Feeling strongly compelled to read on and I did with tears and tissues. What an incredible, beautiful, heart felt story. What a blessed mother you are and what blessed children for God to give them to you! Thank you for sharing your story and for touching my life in ways you will never know!

Ashley J @ MommyByDayCrafterByNight said...

Thanks for this beautiful post. It made me cry. As someone who grew up with ds in my family, it makes my heart beam to meet others who feel as blessed as I am to get to be a part of their special lives. It's such a blessing. She is an angel... Enjoy your little bunny. xoxo

PaperFlora2 said...

...and a beautiful story it is!!

God bless you and your amazing family.

Sarah said...

I found the link to your story on Pinterest. Oh my goodness it is the most beautiful birth story I have ever heard. I am expecting my first baby after a miscarriage earlier this year. I've been so afraid of all the unknowns, wondering if my baby would be healthy and if this one will make it, not trusting my body to do what it was designed to do. I am no longer afraid. Your story changed my life. Congratulations on your sweet angel. God must love and trust you so much to send such a sweet spirit to your home!

The Erickson Five said...

THANK YOU! Your story is Beautiful! I Cried so hard! Last Fall we lost what would have been our 4th. I would Rather have had a baby that had Donws Syndrome or something else than to have lost ours. You were meant to be her Mama and she your daughter! May God bless you through out your lives and be a Beacon of Love and hope. God Bless.

bdschad said...

Just found your blog tonight. What a beautiful story. Love seeing pictures of your little girls now. You are very blessed!

Ashleyplus2.5 said...

I saw your story on pinterest and had to read it. Tears fell as I scrolled down the page and read your beautiful story. They fell even harder when I looked at the beautiful pictures of your family and all those precious moments that were captured. You are such a strong mother and don't ever thing other wise. You have 2 beautiful daughters and so much to be proud of. Congrats to you on your amazing little Bunny and I pray nothing but happiness and memories for your families future!!!

Clare said...
This comment has been removed by the author.
Clare said...

At first, I was heartbroken and mad when I started reading this blog post. I was upset because my sister was born with cerebral palsy. While that is not the same as D.S, it still bothered me. I was upset that It was that hard for you to cope with your daughter being born with down syndrome, and the fact that you wanted to run away from it and said how sad you were. BUT then, I continued reading your post and saw how you over came those feelings.

I know it may be hard to realize at first, but you were given such a beautiful gift. Many women aren't able to have children, and you were one of the lucky ones. Cherish it. Nella needs you and your love. She is one of the most amazing things that can happen to you. I wouldn't be the person I am today if my sister was never born. Though she is different than the "norm", she is absolutely amazing. She sees life as a privilege, she sees struggles as easy obstacles, and she sees acceptance as something easily attainable. Nella will grow up to be a beautiful young lady and will one day thank you for everything you do... I am so proud of you and all you have overcome. I wish the best for you and your family and a great life for Nella.

Clare said...

At first, I was heartbroken and mad when I started reading this blog post. I was upset because my sister was born with cerebral palsy. While that is not the same as D.S, it still bothered me. I was upset that It was that hard for you to cope with your daughter being born with down syndrome, and the fact that you wanted to run away from it and said how sad you were. BUT then, I continued reading your post and saw how you over came those feelings.

I know it may be hard to realize at first, but you were given such a beautiful gift. Many women aren't able to have children, and you were one of the lucky ones. Cherish it. Nella needs you and your love. She is one of the most amazing things that can happen to you. I wouldn't be the person I am today if my sister was never born. Though she is different than the "norm", she is absolutely amazing. She sees life as a privilege, she sees struggles as easy obstacles, and she sees acceptance as something easily attainable. Nella will grow up to be a beautiful young lady and will one day thank you for everything you do... I am so proud of you and all you have overcome. I wish the best for you and your family and a great life for Nella.

Melissa said...

My heart sank...and the tears poured in...by the way my eyes poof up like rocky's too!! Your sister said the most important words ...you were chosen...that you were, she is blessed to have a mommy like you! If there were only more people like you in this world it would be a much more better place...you give hope.

sibel rodriguez said...

Thank you for sharing this beautiful story....calling her "bunny", I like it...it conveys so much love...I have cried so much, but the tears are full of joy....Your pictures speak a thousand words, thank you for sharing them with everyone.

Rosie said...

You don't know me I stumbled across your post through the wonderful pinteres. God truly blessed me by letting me find this! You are an incredible mother! As much as God has blessed you by giving you your girls he has given them by giving them you as their mother! I am the guardian of another incredible "unique" gift of God and at 13 she's beautiful, funny, and the most helpful genuinely sweet girl I've ever known! Thank you for your story! God bless you, Bunny, and your entire family!

Rosie said...

You don't know me I stumbled across your post through the wonderful pinteres. God truly blessed me by letting me find this! You are an incredible mother! As much as God has blessed you by giving you your girls he has given them by giving them you as their mother! I am the guardian of another incredible "unique" gift of God and at 13 she's beautiful, funny, and the most helpful genuinely sweet girl I've ever known! Thank you for your story! God bless you, Bunny, and your entire family!

Amber Ellen said...

This is the third time I have read Nella's birth story and it still makes me cry. I had a similar experience with my son, and your story has helped me look at the positive & beautiful and learn & laugh at the tough moments when I remember that day.

Thank you so much xo

Kate said...

I am crying so hard at how beautiful your story is. I don't have children with DS but both of my girls were flagged for increased risk in the womb, and I had to wrestle both times with what that life would be like. You have discovered the joy and beauty of that life. Thank you for your honesty and for your bravery in sharing your story. Love and blessings to you, Nella, Lainey and Brett.

laura said...

wow. i just found your blog reading your pumpkin carving party post. then i saw the if you are new start here & i clicked on it & have cried a bucket of tears as i read this amazing story. your story. thank you so much for sharing. we are awaiting the birth of our third child in may (after much difficulty with previous pregnancies & our son born at 29 weeks suddenly) i can identify somewhat with your story. i look forward to reading more of your blog & thank you for taking time to do it. just wanted to say thank you. laura

Mikkiwin said...

I think you are amazing. You're family is so lucky to have you to inspire their lives. Both of your girls are absolutely stunning! I have to say, every person with Down Syndrome I have ever met exudes unconditional love that the world could use a lot more of! A true reflection of Jesus Christ's love. I so very much appreciate your story, especially your honesty. You have an amazing talent for writing and a very perfect family and I know you all will continue to be blessed beyond your imagination!!!

Rae said...

I NEVER cry from reading stories, no matter how sad they are. This brought me to tears. I am sitting in my college library, reading this and all I can think of is..how unbelievably wonderful and brave you are. I cannot imagine it being easy dealing with (at first, at least) a newborn with Down Syndrome. Your daughter is gorgeous, and so is your eldest daughter. Such a beautiful story and family. I wish you guys much happiness!

Lacie said...

You have thousands of comments already, but I wanted to say something. Your story brought me to tears because it sounds very similar to how my mom felt the day that my sister Justine was born with Down Syndrome.

Not only was I crying for your pain, but for the happiness I am so excited for you to have. My sister is now 22 and there have been challenging times, but she is the constant ray of sunshine in my life. I am in the same position as your little Lainey. The oldest child with my sister Justine right after me. I feel SO blessed to be her big sister and would not want it any other way.

The same goes for my family. In fact, when their third child was going to be born, my mom found my dad praying that the child would have down syndrome.

I am so excited for you to experience the large amount love that only these special sort of spirits can contain and share with the world. No one else can love that way!

MamaFeather said...

Your words- fear, joy, pain and true love- are astoundingly beautiful. Thank you for sharing all of it.

Zenna said...

This is one of the most beautiful stories I have ever heard. The lesson you have taught all of us through this is one so profound it leaves me speechless. Life isn't about the small things like the weather, the traffic, the stress, ect. It's about love. And how could you ever care about anything else when you have that absolutely beautiful, perfect blessing in your arms every day. Your family is so strong. The world could really learn something from your family and that darling little Nella.

Kory said...

Nella is so beautiful and I absolutely love the photo of you and her smiling, it absolutely captures the love and bond between you.

Thank you for sharing your beautiful story, your beautiful pictures and your beautiful girls with the world.

Annette Zapolis said...

I am the older sister of a disabled child. Our Catherine, endearingly called C.C., has changed my life in so many wonderful ways. She just turned 23. She is happy, loving, has friends and loves animals. Her life has been difficult at times, but the simple joys we often miss in our "normal" busy lives, make her happy- and thats all that matters, because thats what life is all about.

Ashleigh Spagnuolo said...

This is the most beautiful thing I have ever read on the internet. Your honesty...there are no words. Your little darling angel girl is so lucky to have you for a mom...but you are also so lucky to have her.

Meagan Phillips said...

I have not had kids yet but never even thought of something other than the joy of having a perfect child. Your story was amazing and opened my eyes to real life and not just day dreams. I admire your raw honesty and I appreciate it. Thank you so much for sharing your story and blessing so many people with true love.

Meagan Phillips said...

I have not had kids yet but never even thought of something other than the joy of having a perfect child. Your story was amazing and opened my eyes to real life and not just day dreams. I admire your raw honesty and I appreciate it. Thank you so much for sharing your story and blessing so many people with true love.

Katie Boscarino said...

Thank you for sharing your birth story! I cried as I read it - in all your honesty and heartache. Thank you for being real and opening up this part of your heart, so that others may hear the story of your precious baby girl. May God bless you and your family!

Mama J said...

You are so incredibly blessed. Your family is beautiful and Nella is such an amazing gift. She is so special she has an extra chromosome! Congratulations! I have two boys and both were early and spent time in the NICU. My youngest is 10 months old and spent the first month of his life in the hospital, but I wouldn't change anything. God doesn't give us more than we can handle. I wish you so many wonderful years of happiness with your girls, family and friends.

henryandoliversmom.blogspot.com

Ellie Loton said...
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Erika Cannaday said...

A dear friend of mine recently was told her baby may have Down Syndrome. They weighed the risks and the possibilities and continued the pregnancy. In her subsequent research, she found your blog and I know it gave her comfort. She prepared for the "worst" and hoped for the best.

Her baby girl was born with Down Syndrome earlier this week. I don't know how to be there for her other than to encourage her, remind her of her daughter's beauty and wonder, and to listen. So reading your blog has helped me too. I cannot be in her head and cannot imagine what she is feeling, but I feel like I can better support her having just reread your birth story.

Thank you for being courageous enough to share. Thank you for showing all the beauty behind the pain. Thank you for helping her and thank you for helping me too.

a917a1b8-2928-11e2-8887-000bcdcb2996 said...

This made me cry and smile you have such a blessed little family and I really enjoyed reading this story thank you so much for writng your birth story and being willing to share it with others.. God Bless you.. If I ever have kids I hope I am as brave and strong as you.

Ellie Loton said...

Kelle, this is the most beautiful story I have ever read...I cried through the entire thing.

Nearly nineteen years ago my younger brother and I eagerly awaited our new baby brother or sister. I remember being so happy when I heard she was a girl (my three-year-old brother was not so impressed, as he wanted a boy!). And when our grandparents took us to the hospital to see her it was exciting and wonderful and oh-so-special!

It didn't take me long to realise she was even more special...my baby sister had Down Syndrome and my mum made sure that even though I was four years old I would understand from the beginning that people might treat her differently...that we had to take extra special care of her because she would need our love and support even more.

I can honestly say that Amy is the best thing that's ever happened to my family. She has driven me up the wall more times than I can remember...but that's what sisters do, right? Just by simply being who she is she has made us better people, opened our hearts more to love and acceptance, has given more love than anyone else I know. She is quirky and a little bit different, but she’s so full of joy and sweetness that everyone she meets falls in love with her. Mum had to fight harder for her than she did for my brother and me to make sure she was treated fairly and given the opportunities she needed to help her. Mum always told me she knew when she was pregnant that Amy would be extra-special; I think she awaited her birth with her mama-bear instincts on red-alert to fight for her baby!

Amy finished high school last week. She was so ready to be done with school even though she always enjoyed it. She has special tutoring at home for practical money knowledge, guitar lessons and most especially painting, which she has taken to really well (no way I could do what she does!). I'm so proud of my baby sister...even though I will never swap clothes or shoes with her (because she's so tiny compared to me!), or have conversations about life the way I can with my brother or friends. She has made me such a better person than I would have been without her, and for that I will always be grateful.

So yes, although it will be hard for you sometimes, although it will be hard for Nella herself sometimes...it will be worth everything! She will make your family so special...will be the little gem you never even knew you needed. Treasure her, because there will be no one else in the world like her!

mcalabu said...
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